Temat: quality of life support - Katalog OPAC zbiorów

Skocz do pozycji: 1.

Tytuł:: Teoretyczne i metodologiczne poszukiwania w obszarze problematyki niepełnosprawności – stan bieżący i perspektywy rozwoju
Theoretical and methodological research in the area of dsabilities – current state and development prospects
Autorzy:: Majewicz, Piotr
Powiązania:: https://bibliotekanauki.pl/articles/2036820.pdf
Data publikacji:: 2021-09-17
Wydawca:: Libron
Tematy:: disability
paradigm
adaptation
self-organization
quality of life support
niepełnosprawność
paradygmat
adaptacja
samoorganizacja
wsparcie jakości życia
Opis:: Liczne zmiany spowodowane przemianami natury paradygmatycznej oraz dodatkowo zakłócenia wywołane przez COVID-19 doprowadziły do powstania w teorii, metodologii oraz praktyce rewalidacyjnej rozwiązań nieco odmiennych od tradycyjnych. Najbardziej pierwotne dla rozpatrywanych zagadnień stany ekologiczne, w jakich mogą znajdować się organizmy, to stan nadwyżki populacyjnej oraz stan niedomiaru populacyjnego. Pierwszy z wymienionych stanów stał się podstawą opracowania teorii ewolucji, a drugi dał impuls do rozpatrywania wielu zjawisk w konwencji samoorganizujących się systemów, co niewątpliwie wywarło wpływ na formowanie się paradygmatów w obszarze rehabilitacji. Obecnie dominujący paradygmat humanistyczny i jego szczegółowe postacie stanowią podstawę rozwoju badań i praktyki związanej z szeroko ujętą problematyką niepełnosprawności. Wciąż pojawiają się nowe propozycje w tym zakresie. Jedną z nich stanowi paradygmat wspierania jakości życia osób z niepełnosprawnością.
A number of changes caused by paradigmatic changes as well as additionally disturbed by COVID-19 have led to the emergence of solutions slightly different from the conventional ones in theory, methodology and practice of rehabilitation. The primary ecological states for the issues under consideration in which organisms may be found are those of population surplus and population shortage. The first of these states became the basis for the development of the evolution theory, while the second one served as an impulse to consider a number of phenomena in the convention of self-organizing systems, which undoubtedly influenced the formation of certain paradigms in the field of rehabilitation. Currently, the dominant humanistic paradigm with its detailed forms constitutes the basis for the development of research and experience related to the broadly understood issue of disability. With new ideas being constantly generated, the one which has been discussed in the article is the paradigm of the quality of life support for people with disabilities.
Źródło:: Konteksty Pedagogiczne; 2021, 1, 16; 11-30
2300-6471
Pojawia się w:: Konteksty Pedagogiczne
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 2.

Tytuł:: The effect of perceived social support on the quality of life of hemodialysis patients. A preliminary study.
Autorzy:: Theofilou, P.
Stefanidou, M.
Giannakopoulou, N.
Tzavella, F.
Zyga, S.
Tsironi, M.
Alikari, V.
Powiązania:: https://bibliotekanauki.pl/articles/1918921.pdf
Data publikacji:: 2020-06-10
Wydawca:: Uniwersytet Medyczny w Białymstoku
Tematy:: hemodialysis
quality of life
social support.
Opis:: Purpose: Recent studies have shown that the role of social support is a predictive factor influencing the course of the disease. The current study is focused on patients’ assessment of quality of life and the relationship of the latter with perceived social support. Materials and methods: A total sample of 40 hemodialysis patients voluntarily participated in this study. Participants were recruited from two clinics in Athens and have been under hemodialysis. The measures used were the Missoula- Vitas Quality of Life Index–15 and the Multidimensional Scale of Perceived Social Support. For the data analysis descriptive statistics, parametric Pearson r test and Non-parametric Spearman’s rho test were used. Statistical level was set up at 0.05. Results: The results of the current study provide good quality of life of hemodialysis patients and significant statistical significance between quality of life in several domains. Conclusions: This study concludes that the participants’ assessment of quality of life is poor regarding the well-being dimension. Also, perceived social support is significantly related to quality of life
Źródło:: Progress in Health Sciences; 2020, 10(1); 19-25
2083-1617
Pojawia się w:: Progress in Health Sciences
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 3.

Tytuł:: Burnout syndrome impacts on quality of life in nursing professionals: The contribution of perceived social support
Autorzy:: Fradelos, E.
Mpelegrinos, S.
Mparo, Ch.
Vassilopoulou, Ch.
Argyrou, P.
Tsironi, M.
Zyga, S.
Theofilou, P.
Powiązania:: https://bibliotekanauki.pl/articles/1916393.pdf
Data publikacji:: 2014
Wydawca:: Uniwersytet Medyczny w Białymstoku
Tematy:: burnout
quality of life
social support
nursing staff
Opis:: Purpose: To examine the impacts of burnout that has in health-related quality of life (QOL) in nursing staff in Greece. The association of social support with burnout and QOL is also investigated. Materials and methods: Individuals working in Mental and General Hospitals in the broader area of Athens participated in this study (N.139). The measurement tools include a) the Maslach Burnout Inventory (MBI), b) the SF-36 Health Survey and c. the Multidimensional Scale of Perceived Social Support. Burnout and QOL are expected to be related to the evaluation of social environment. Results: The results indicated the impacts that burnout has on quality of life and the positive effect of social support for nursing professionals in the levels of burnout. Conclusions: There is an association between burnout, quality of life and social support. Social support and socio-demographic factors appear to affect the levels of burnout to Psychiatric and General Hospital.
Źródło:: Progress in Health Sciences; 2014, 4, 1; 102-109
2083-1617
Pojawia się w:: Progress in Health Sciences
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 4.

Tytuł:: QUALITY OF LIFE AND ITS GENERATING FACTORS IN HEMODIALYSIS PATIENTS HOSPITALIZED AT THE REGIONAL HOSPITAL IDRISSI KÉNITRA MOROCCO
Autorzy:: Touil, Driss
Boualam, Abderrahmane
El Harchaoui, Ilias
Louragli, Ismail
Aouane, Mahjoub
Touhami Ahami, Ahmed Omar
Powiązania:: https://bibliotekanauki.pl/articles/2138172.pdf
Data publikacji:: 2022-03-28
Wydawca:: Fundacja Edukacji Medycznej, Promocji Zdrowia, Sztuki i Kultury Ars Medica
Tematy:: hemodialysis
quality of life
family support
support from caregivers
Kenitra – Morocco
Opis:: To assess the quality of life of patients with chronic end-stage renal failure under hemodialysis, and to determine its main generators in hemodialysis patients. This is a descriptive and analytical cross-sectional study carried out at the regional hospital of Kénitra (Morocco) in the level of the hemodialysis unit during a period of 3 months with 70 hemodialysis patients diagnosed and treated for chronic renal failure. Data were collected using a questionnaire comprising the socio-demographic, clinical, and nutritional characteristics of Hemodialysis patients and a KDQOL scale (Kidney Disease Quality Of Life) that assesses the quality of life. The scores of the KDQOL-36 were used to assess family, social support, and social support from caregivers. The average age was 51.66± 15.96 years with 57.1% of patients who are female. The components of the quality of life studied show an alteration in the quality of life with a decrease in the scores of the “component of physical health” dimensions with a score of 27.64 ± 29.13,“Component of mental health” with a score of 37.81 ± 22.99, “effects of kidney disease on daily life” with a score of 48.41 ± 21.22 and “burdens of kidney disease” with a score of 28.47 ± 21.50. While the dimension “Symptoms / problems of kidney disease” remains close to normal with a score of 64.61 ± 17.98. Our results showed that certain dimensions of the quality of life correlate with age, sex, family situation, level of education, the presence of a transplant plan, the presence of comorbidities and the duration of hemodialysis. Our study also found a correlation between family social support and quality of life in its “Burdens of Kidney Disease”, “Effects of Kidney Disease on Daily Living”, and the overall quality of life score. On the other hand, there is no significant relationship with support from caregivers. The quality of life of hemodialysis patients is deteriorating. It is influenced by several parameters including family and caregiver social support. The involvement of the family and the health care team in the psychological support process is paramount.
Źródło:: Acta Neuropsychologica; 2022, 20(1); 67-79
1730-7503
2084-4298
Pojawia się w:: Acta Neuropsychologica
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 5.

Tytuł:: Evaluation of the quality of life of elderly people with chronic diseases
Autorzy:: Aleksandra, Kiełtyka,
Maryla, Leja,
Bogumiła, Lubińska-Żądło,
Bogumiła, Kiełtyka,
Powiązania:: https://bibliotekanauki.pl/articles/893667.pdf
Data publikacji:: 2019-12-31
Wydawca:: Akademia Pedagogiki Specjalnej im. Marii Grzegorzewskiej. Wydawnictwo APS
Tematy:: the quality of life
WHOQOL-BREF questionnaire
institutional support
Opis:: The purpose of this thesis is the comparison of some chosen aspects of life quality of elderly people that are chronically ill and reside uder institutional care or stay at their own homes. Research covered 100 seniors, ages from 65 to 92, including 50 patients of the Nursing and Therapeutic Institution in Nowy Targ and 50 ill and elderly people staying at their homes and using home rehabilitation. 50 men and 50 women were interviewed. To carry out the research I used the diagnostic survey method. The quality of life of the subjects was evaluated by means of the standard WHOQOL-BREF questionnaire. Three other standard questionnairies were also used in the research: the Geriatric Depression Scale (GDS), Tinetti’s Performance Oriented Mobility Assessment (POMA) and the Lawton Instrumental Activities of Daily Living scale (IADL). ZOL’s members rated lower satisfaction with quality of life and their health, compared to seniors staying in homes under the care of their families. In the study groups, significantly higher quality of life in four areas was found in the group of seniors living in their own homes compared to the seniors living in ZOL. Based on the research results it was found that the evaluation of quality of life of elderly people significantly depends on the environment they live in.
Źródło:: Praca Socjalna; 2017, 32(5); 81-103
0860-3480
Pojawia się w:: Praca Socjalna
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 6.

Tytuł:: Contemporary Educational Space for University Students and Young People with Intellectual Disabilities: Integration Through Social Interaction
Autorzy:: Adamczyk, Monika
Majewicz, Piotr
Wolny, Jakub
Powiązania:: https://bibliotekanauki.pl/articles/44451437.pdf
Data publikacji:: 2023
Wydawca:: Akademia Ignatianum w Krakowie
Tematy:: independent living
intellectual disability
quality of life
support
special education teachers
Opis:: Objectives of the research: The goal of the research was to identify the type and extent of activities that special education facilities engage in to teach and promote independence in people with profound disorders of intellectual development. Research methods: Empirical material was collected using the author’s original online questionnaire, which consisted of 30 questions measuring the extent to which students’ needs for developing independent living skills are met. The survey was conducted among special education teachers (N=642) from seven European countries (Portugal, Spain, Belgium, Poland, Bulgaria, Romania, and Turkey). A short description of the context of the issue: Independent living is widely seen as an immanent attribute of adulthood. Children and adolescents are prepared for independent living through the process of upbringing and socialization; people with disabilities are additionally prepared through rehabilitation. For people with a profound disorder of intellectual development, independent living is challenging but possible with the right support. Research findings: The results indicate that in the course of developing independent living skills in people with profound disorders of intellectual development, efforts are mainly made to improve their self-management skills and democratic management methods in both team work and individual work. Conclusions and recommendations: In the surveyed countries, there is a tendency to limit work for developing independent living skills to a single type of intervention. Rarely are two or three methods – not to mention four – simultaneously used to stimulate the development of independent living skills. It is therefore necessary to call for increased efforts to promote independent living among people with profound disorders of intellectual development and to focus this support on autonomy, self-determination, achieving quality of life goals, and, above all, the ability to make decisions – since this is what determines true independence in life.
Źródło:: Multidisciplinary Journal of School Education; 2023, 12, 2 (24); 357-375
2543-7585
Pojawia się w:: Multidisciplinary Journal of School Education
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 7.

Tytuł:: Supporting the Development of Competences Necessary for the Independent Living of People With Profound Disorders of Intellectual Development: An Empirical Study
Autorzy:: Adamczyk, Monika
Majewicz, Piotr
Wolny, Jakub
Powiązania:: https://bibliotekanauki.pl/articles/44452275.pdf
Data publikacji:: 2023
Wydawca:: Akademia Ignatianum w Krakowie
Tematy:: independent living
intellectual disability
quality of life
support
special education teachers
Opis:: Objectives of the research: The goal of the research was to identify the type and extent of activities that special education facilities engage in to teach and promote independence in people with profound disorders of intellectual development. Research methods: Empirical material was collected using the author’s original online questionnaire, which consisted of 30 questions measuring the extent to which students’ needs for developing independent living skills are met. The survey was conducted among special education teachers (N=642) from seven European countries (Portugal, Spain, Belgium, Poland, Bulgaria, Romania, and Turkey). A short description of the context of the issue: Independent living is widely seen as an immanent attribute of adulthood. Children and adolescents are prepared for independent living through the process of upbringing and socialization; people with disabilities are additionally prepared through rehabilitation. For people with a profound disorder of intellectual development, independent living is challenging but possible with the right support. Research findings: The results indicate that in the course of developing independent living skills in people with profound disorders of intellectual development, efforts are mainly made to improve their self-management skills and democratic management methods in both team work and individual work. Conclusions and recommendations: In the surveyed countries, there is a tendency to limit work for developing independent living skills to a single type of intervention. Rarely are two or three methods – not to mention four – simultaneously used to stimulate the development of independent living skills. It is therefore necessary to call for increased efforts to promote independent living among people with profound disorders of intellectual development and to focus this support on autonomy, self-determination, achieving quality of life goals, and, above all, the ability to make decisions – since this is what determines true independence in life.
Źródło:: Multidisciplinary Journal of School Education; 2023, 12, 2 (24); 357-375
2543-7585
Pojawia się w:: Multidisciplinary Journal of School Education
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 8.

Tytuł:: Contemporary Educational Space for University Students and Young People with Intellectual Disabilities: Integration Through Social Interaction
Autorzy:: Sobocha, Ewelina
Pietrzak, Małgorzata
Powiązania:: https://bibliotekanauki.pl/articles/44452361.pdf
Data publikacji:: 2023
Wydawca:: Akademia Ignatianum w Krakowie
Tematy:: independent living
intellectual disability
quality of life
support
special education teachers
Opis:: Objectives of the research: The goal of the research was to identify the type and extent of activities that special education facilities engage in to teach and promote independence in people with profound disorders of intellectual development. Research methods: Empirical material was collected using the author’s original online questionnaire, which consisted of 30 questions measuring the extent to which students’ needs for developing independent living skills are met. The survey was conducted among special education teachers (N=642) from seven European countries (Portugal, Spain, Belgium, Poland, Bulgaria, Romania, and Turkey). A short description of the context of the issue: Independent living is widely seen as an immanent attribute of adulthood. Children and adolescents are prepared for independent living through the process of upbringing and socialization; people with disabilities are additionally prepared through rehabilitation. For people with a profound disorder of intellectual development, independent living is challenging but possible with the right support. Research findings: The results indicate that in the course of developing independent living skills in people with profound disorders of intellectual development, efforts are mainly made to improve their self-management skills and democratic management methods in both team work and individual work. Conclusions and recommendations: In the surveyed countries, there is a tendency to limit work for developing independent living skills to a single type of intervention. Rarely are two or three methods – not to mention four – simultaneously used to stimulate the development of independent living skills. It is therefore necessary to call for increased efforts to promote independent living among people with profound disorders of intellectual development and to focus this support on autonomy, self-determination, achieving quality of life goals, and, above all, the ability to make decisions – since this is what determines true independence in life.
Źródło:: Multidisciplinary Journal of School Education; 2023, 12, 2 (24); 377-394
2543-7585
Pojawia się w:: Multidisciplinary Journal of School Education
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 9.

Tytuł:: Zaangażowanie dziadków w ocenie wnuków z rodzin samotnych matek
Autorzy:: Kozerska, Agnieszka
Miszczak, Ewa
Napora, Elżbieta
Powiązania:: https://bibliotekanauki.pl/articles/2046230.pdf
Data publikacji:: 2015-03-31
Wydawca:: Wydawnictwo Adam Marszałek
Tematy:: parentification
social support
quality of life
resilience single mother fam ily
grandparents–grandchildren
Opis:: Background: The issue of grandparents’ support provided to their families is undertaken in Polish literature very seldom. There are no studies concerning single mother families. The purpose of the article is to examine the extent to which grandparents provide support to grandchildren brought up in single mother families, and determine the relationship between the grandparents’ support and the grandchildren’s quality of life. Materials and Methods: The survey data were collected from 119 people from single mother families. The Student’s Life Satisfaction Scale SLSS was used to test the quality of life and the Social Support Scale (SWS) was used to test the strength and type of support from grandparents. Results: Mother’s parents are involved in each of the considered types of support in a higher degree than father’s parents, regardless of the place of residence of the single mother family. In small towns maternal grandparents provide information support more often than paternal grandparents, maternal grandmothers engage in instrumental aid to grandchildren more often than paternal grandparents. In cases of families living in large cities, when the paternal grandfather gives instrumental, emotional or evaluative support, grandchildren assess their quality of life significantly better. The assessment of quality of life is also higher in cases of maternal grandfather’s emotional engagement in support for grandchildren. Conclusions: The results suggest that the grandfathers’ (particularly paternal grandfather’s) support in the single mother family is positively connected with quality of life of grandchildren. It can be assumed that supporting grandparents contribute to strengthening the resilience of whole family.
Źródło:: Kultura i Edukacja; 2015, 1(107); 231-246
1230-266X
Pojawia się w:: Kultura i Edukacja
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 10.

Tytuł:: Porównanie wsparcia społecznego i jakości życia matek i ojców dzieci z niepełnosprawnością fizyczną
A comparison of social support and the quality of life of mothers and fathers of children with physical disabilities
Autorzy:: Dębska, Grażyna
Pudzisz, Paulina
Ławska, Wioletta
Powiązania:: https://bibliotekanauki.pl/articles/2129714.pdf
Data publikacji:: 2022
Wydawca:: Krakowska Akademia im. Andrzeja Frycza Modrzewskiego
Tematy:: wsparcie społeczne
dziecko z niepełnosprawnością
jakość życia
social support
disabled child
quality of life
Opis:: Wprowadzenie: Bycie rodzicem dziecka z niepełnosprawnością jest czynnikiem istotnie obniżającym jakość życia. Jest ona zależna od stopnia niepełnosprawności dziecka oraz od otrzymywanego wsparcia. Celem badania było porównanie poziomu wsparcia społecznego oraz jakości życia matek i ojców dzieci z niepełnosprawnością fizyczną. Materiał i metody: W badaniu uczestniczyło 64 rodziców (32 matki i 32 ojców); średnia wieku matek wynosiła 37 lat, a ojców 41 lat. W pracy wykorzystano metodę sondażu diagnostycznego, natomiast narzędzia badawcze stanowiły: polska wersja Berlińskich Skal Wsparcia Społecznego (BSSS) oraz Skala Jakości Życia z kwestionariusza WHOQOL – BREF. Wyniki: Wykazano brak różnic istotnych statystycznie pomiędzy matkami a ojcami w zakresie mierzonych podskal wsparcia społecznego (p > 0,05). Ojcowie w porównaniu do matek mają wyższą jakość życia w dziedzinie psychologicznej (M = 3,12, SD = 0,79 vs. M = 3,53, SD = 0,56, p = 0,021). Koreluje ona u nich ze spostrzeganym dostępnym i aktualnie otrzymywanym wsparciem, a jakość życia w dziedzinie środowiskowej jest powiązana z aktualnie otrzymywanym wsparciem. Również u ojców jakość życia w dziedzinie somatycznej nie pozostaje w istotnym związku z żadną skalą wsparcia społecznego. Z kolei u matek jakość życia w dziedzinie somatycznej, psychologicznej, socjalnej i środowiskowej jest zależna od spostrzeganego dostępnego i aktualnie otrzymywanego wsparcia (p < 0,05). Wnioski: Wsparcie społeczne zarówno u matek, jak i u ojców dzieci z niepełnosprawnościami fizycznymi jest na podobnym poziomie. Jakość życia rodziców wychowujących dziecko z niepełnosprawnością we wszystkich dziedzinach poprawia się w związku z otrzymywanym wsparciem społecznym. Wyjątkiem jest jakość życia w dziedzinie somatycznej u ojców, która nie zależy od wsparcia. Ojcowie w badanej grupie mają wyższą jakość życia w dziedzinie psychologicznej.
Introduction: Being a parent of a disabled child is a factor that can clearly lower the quality of life. This is dependent on the level of the child’s disability and the level of support received. The aim of this study was to compare the level of social support and the quality of life of mothers and fathers. Material and methods: Sixty-four parents participated in the study and the average age of the mothers was 37 years, and of the fathers was 41 years. The study used the diagnostic survey method, while the evaluation tool was the Polish version of the Berlin Scale of Social Support (BSSS) and the Quality of Life Scale (WHOQOL – BREF). Results: There were no statistically significant differences between mothers and fathers in the subscales of social support (p > 0.05). Compared to mothers, fathers have a higher quality of life in the psychological field (M = 3.12, SD = 0.79 vs. M = 3.53, SD = 0.56, p = 0.021). In turn, in fathers, the quality of life in the psychological and social field correlates with the perceived available support, support currently received, and the quality of life in the environmental category is related to the support currently received. However, in the group of fathers, the quality of life in the somatic field is not significantly related to any scale of social support. In mothers, the somatic, psychological, social and environmental quality of life depends on the perceived support available and currently received (p < 0.05). Conclusions: Social support for both the mothers and fathers of children with physical disabilities was at a similar level. The quality of life of parents raising a disabled child is improving in all areas due to the social support received. The exception is the somatic quality of life in fathers, which does not depend on support. The fathers in the study group have a higher quality of life in the psychological field.
Źródło:: Państwo i Społeczeństwo; 2022, 1; 23-34
1643-8299
2451-0858
Pojawia się w:: Państwo i Społeczeństwo
Dostawca treści:: Biblioteka Nauki

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