Temat: protection of genetic data - Katalog OPAC zbiorów

Skocz do pozycji: 1.

Tytuł:: Bezpieczeństwo badań genetycznych - nowoczesne technologie w medycynie
Security of Genetic Research – Modern Technologies in Medicine
Autorzy:: Popławska, Monika
Panasiuk, Andrzej
Powiązania:: https://bibliotekanauki.pl/articles/417124.pdf
Data publikacji:: 2018-10
Wydawca:: Najwyższa Izba Kontroli
Tematy:: genetic research
health care entity
genetic data
protection of genetic data
medicinal activity
Opis:: Genetic research allows not only for precise diagnosing of diseases, but also for selecting therapy and appropriate medicines, and for insight into future health condition. Genetic information obtained as a result of genetic research is related not only to patients, but to their relatives, too. In this context a threat arises of abuse, infringement of human rights and unauthorised access to genetic data. The audit of NIK was aimed, in the first place, to examine whether genetic research in Poland is conducted with due care for safety requirements, that is whether Polish legal regulations keep up with the development of modern technologies in medicine.
Źródło:: Kontrola Państwowa; 2018, 63, 5 (382); 30-41
0452-5027
Pojawia się w:: Kontrola Państwowa
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 2.

Tytuł:: European Court of Human Rights Case Law on Genetic Information in the Scope of International Biomedical Law
Autorzy:: Kwiatkowski, Paweł
Powiązania:: https://bibliotekanauki.pl/articles/1831451.pdf
Data publikacji:: 2020-12-30
Wydawca:: Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:: genetic data protection
the right to respect for private life
international biomedical law
European Court of Human Rights case law
Opis:: The aim of the study is to analyze the case law of the European Court of Human Rights on genetic information in the scope of international biomedical law, as expressed in the International Declaration on Human Genetic Data and the Convention on the Protection of Human Rights and Human Dignity in the Field of Application of Biology and Medicine. The Court held that the genetic information is protected under the law of the Convention on Human Rights and Fundamental Freedoms. The model of the right to respect for private life is reflected in its shape, as the Court noted in the Van der Velden v. The Netherlands and S. and Marper v. The United Kingdom cases. It leads to the conclusion that the provision of Article 8 of the Convention provides the protection of genetic information, subject to certain restrictions that are “in accordance with law” and “necessary in a democratic society”. Such conclusion is in compliance with art. 12, art. 17 (b) art. 21 (c) of the International Declaration on Human Genetic Data, and art. 11 of the Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine.
Źródło:: Adam Mickiewicz University Law Review; 2020, 11; 119-137
2450-0976
Pojawia się w:: Adam Mickiewicz University Law Review
Dostawca treści:: Biblioteka Nauki

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