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Tytuł:
The effect of the burden of patient care with cancer on family caregivers
Autorzy:
Anterrioti, Ch.
Alikari, V.
Kelesi, M.
Powiązania:
https://bibliotekanauki.pl/articles/1918935.pdf
Data publikacji:
2020-06-10
Wydawca:
Uniwersytet Medyczny w Białymstoku
Tematy:
cancer
family
caregivers
burden
Opis:
Cancer is a major problem that affects today's society. Besides patients suffering from this disease, cancer has also a huge impact on the quality of life of the family. This study aimed to investigate the latest bibliography on the effect of the burden of patient care with cancer on family caregivers. Family caregivers face physical health problems such as physical pain, fatigue, sleep disturbances. Moreover, several psychological effects are shown, in which various disorders such as depression are included. Psychological disorders, also, include adjustment disorder, panic disorder, anxiety, and emotional reactions such as anger, frustration, and fear. In the financial sector, caregivers face several problems due to the coverage of medical needs which are reinforced by reducing or stopping their work because of the care burden. At the same time, they are confronted with social impacts in which loneliness and isolation are attributable to the limitation of their social activities. As far as the age group of the patient is concerned, the effects of caring for young patients are more psychological than physical in opposite to the older people. The burden experienced by the family of the cancer patient exhausts family and it becomes necessary to identify problems and assess their needs. Health professionals should strength caregivers with actions such as psychological support, training, and participation in social and supportive programs in order to improve their personal health and quality of life.
Źródło:
Progress in Health Sciences; 2020, 10(1); 102-107
2083-1617
Pojawia się w:
Progress in Health Sciences
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Effectiveness of psycho-education on knowledge regarding schizophrenia and caregivers’ burden among caregivers of patients with schizophrenia – a randomized controlled trial
Autorzy:
Thimmajja, Sunanda Govinder
Rathinasamy, Eilean Victoria Lazarus
Powiązania:
https://bibliotekanauki.pl/articles/552015.pdf
Data publikacji:
2019
Wydawca:
Stowarzyszenie Przyjaciół Medycyny Rodzinnej i Lekarzy Rodzinnych
Tematy:
schizophrenia
caregivers
education.
Opis:
Background. Schizophrenia is one of the commonly occurring disorders, often causing a high degree of disability to the patients, as well as being stressful to the caregivers. Objectives. To find the efficacy of psycho-education on knowledge regarding schizophrenia among caregivers and reducing their level of burden. Material and methods. A randomized controlled trial was used to assess the effectiveness of psycho-education among caregivers of patients with schizophrenia. This study was conducted at a selected state government mental hospital in Karnataka, India. 350 caregivers were randomly assigned to study (n = 175) and control groups (n = 175). Both the group subjects were initially assessed for knowledge and burden. The study group caregivers participated in one or two psycho-education sessions with routine nursing care. Control group subjects received routine care in the hospital. Post-intervention assessment was done at the end of one-month and three-month intervals. Results. At pre-test, the study group caregivers’ mean knowledge scores were mean = 22.93, SD = 17.03, which was improved to mean = 85.90, SD = 9.51 at the one-month follow-up and mean = 97.94, SD = 4.41 at the three-month follow-up. This improvement was statistically significant at a 0.01 level when compared to control group caregivers. The study group caregivers’ mean burden scores that were initially recorded at pre-test mean = 82.37, SD = 10.40 reduced to mean = 49.13, SD = 8.28 at the one-month follow-up and mean = 40.86, SD = 6.27 at the three-month follow-up. This improvement was statistically significant at a 0.01 level when compared to control group caregivers. Conclusions. The study group caregivers showed an improvement in knowledge gain and a reduction in care burden. The present study findings provided evidence for the role of psycho-education intervention in reducing care burden among caregivers of patients with schizophrenia and was also found effective in caring for their relatives with appropriate knowledge
Źródło:
Family Medicine & Primary Care Review; 2019, 2; 104-111
1734-3402
Pojawia się w:
Family Medicine & Primary Care Review
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Caregiver burden and the role of social support in the care of children with cystic fibrosis
Autorzy:
Dębska, Grażyna
Milaniak, Irena
Domańska, Dorota
Tomaszek, Lucyna
Powiązania:
https://bibliotekanauki.pl/articles/552895.pdf
Data publikacji:
2019
Wydawca:
Stowarzyszenie Przyjaciół Medycyny Rodzinnej i Lekarzy Rodzinnych
Tematy:
cystic fibrosis
caregivers
parents
social support.
Opis:
Background. The effort involved in caring for a patient suffering from cystic fibrosis lies with its parents/caregiver, becoming the cause of excessive burden. In such a situation, social support is an important strategy for coping with chronic illnesses. Objectives. The aim of the study was to assess the level of burden and social support for parents of children with CF and to establish a relationship between them. Material and methods. The study involved 88 parents of patients with cystic fibrosis. The study utilized the standardized Caregiver Burden Scale (CB ) and the Berlin Social Support Scale (BSSS ). Results. The study group experienced an average burden level, which is dependent on the level of education. The highest level of burden was found in two subscales: disappointment and general effort, and the lowest was in the emotional involvement subscale. The level of support in the studied group was high. The largest was observed in the subscale perceived support and received support, and the lowest in the subscale seeking support. Analysis of the regression of the dependent variable of the caregiver’s level of burden showed that the level of burden determines the need for support. It has been observed that as the level of the caregiver’s burden increases, the need for support also increases. In turn, the smaller the caregiver’s burden, the lower the need for support currently received. Conclusions. The caregiver burden on the parent of a children suffering from CF and the received social support are important factors influencing each other in the care of a chronically ill child. This means that the more support received, the lower the sense of burden the caregiver experiences
Źródło:
Family Medicine & Primary Care Review; 2019, 2; 98-103
1734-3402
Pojawia się w:
Family Medicine & Primary Care Review
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Funkcje żłobków polskich od zakończenia II wojny światowej do początków XXI wieku na przykładzie żłobków lubelskich
The Functions of Polish Nurseries from the End of WWII to the Early 20th Century Based on Lublin Nurseries
Autorzy:
Świdrak, Ewelina
Powiązania:
https://bibliotekanauki.pl/articles/29519617.pdf
Data publikacji:
2023
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
nurseries
infants and toddlers daycare
nursery caregivers
Opis:
Nurseries in Poland are over 100 years old. Since the beginning of their existence, before Poland regained independence, until present days they have changed their functions and organization. The aim of the article is to show crèches changed against the political, social and cultural background of the end of the Second World War to the early 21st century. The method used in this article is a historical monograph, and the technics include an analysis of generally accessible documents (literature, magazines for women, legal acts, films) and an analysis of personal documents of retired nursery workers. The documentation has been supplemented by 10 interviews with ladies employed in Lublin nurseries from 1973 until 2019. The article has been written in cooperation with the Municipal Nurses Complex in Lublin. The tasks of crèches as presented in this article are care, pro-professional, prohealth, educational, upbringing and family function. This article is the second part of two articles, which concerns changes in the function of crèches in their history. The first part is published in “Bulletin of the History of Education” in 2019.
Źródło:
Biuletyn Historii Wychowania; 2021, 45; 61-80
1233-2224
Pojawia się w:
Biuletyn Historii Wychowania
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Opiekunowie domowi seniorów z demencją w rzeczywistości pandemicznej
Home Caregivers of Seniors with Dementia in the Pandemic Reality
Autorzy:
Janus, Edyta
Powiązania:
https://bibliotekanauki.pl/articles/28040654.pdf
Data publikacji:
2023
Wydawca:
Uniwersytet Łódzki. Wydawnictwo Uniwersytetu Łódzkiego
Tematy:
opiekunowie domowi
demencja
COVID-19
caregivers
dementia
Opis:
Wybuch pandemii w znaczący sposób wpłynął na rzeczywistość społeczną, której obecna charakterystyka odnosi się przede wszystkim do nieprzewidywalności, permanentnej zmiany i trudności w określeniu działań pozwalających poradzić sobie z konsekwencjami występujących zagrożeń, zarówno na poziomie makro, jak i mikro. Sytuacja ta w sposób szczególny dotyka grup, które jeszcze przed wybuchem pandemii potrzebowały wsparcia. Jedną z nich stanowią opiekunowie domowi osób cierpiących na demencję. Celem artykułu jest przedstawienie sytuacji opiekunów domowych, związanej ze świadczeniem opieki na rzecz ich bliskich chorujących na demencję w kontekście pandemii. Opis dokonywany jest na podstawie danych pozyskanych w wywiadach swobodnych pogłębionych, zrealizowanych w 2021 roku na próbie dobranej w sposób celowy. Badani uznali, że pandemia w zdecydowany sposób wpłynęła na ich funkcjonowanie, w szczególności na sprawowanie opieki (poczucie większego obciążenia ze względu na ograniczenie wsparcia instytucjonalnego i dostępności do podmiotów medycznych), konieczność odnalezienia się w rzeczywistości wirtualnej, wzrost poczucia wykluczenia oraz pogorszenie nastroju wynikające zarówno z doświadczeń osobistych, jak i obserwacji stanu osoby pozostającej pod ich opieką.
The pandemic has had a significant impact on the social reality, the current characteristics of which include: unpredictability, permanent change, and difficulties in defining actions to deal with the consequences of the existing threats, both at the macro and micro level. This situation particularly affects groups that need social support. One of them includes home caregivers of people suffering from dementia. The aim of the article is to present the situation of home caregivers who take care of their family members suffering from dementia. The description is based on data obtained in random interviews carried out in 2021 on a sample selected in a purposeful manner. The respondents recognized that the pandemic had a significant impact on the way they function, in particular: the way they provide care (a feeling of greater burden due to limited institutional support and access to medical care), the need to function in virtual reality, an increase in the sense of exclusion, and the deterioration of mood resulting from both from personal experience and observation of the condition of the person under their care.
Źródło:
Przegląd Socjologii Jakościowej; 2023, 19, 3; 116-131
1733-8069
Pojawia się w:
Przegląd Socjologii Jakościowej
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
The resources of adults taking care of their elderly parents at home – a research report
Autorzy:
Bartnikowska, Urszula
Ćwirynkało, Katarzyna
Powiązania:
https://bibliotekanauki.pl/articles/941389.pdf
Data publikacji:
2020-10-15
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
home care
elderly parents
caregivers
resources
needs
Opis:
Considering the increased demographic aging and system changes in the welfare system in Poland, home care became one of the most important forms of taking care of disabled or elderly persons. Although the country is rooted in the idea of a nanny state, based on large institutions and providing minimum income, for a long time now family has been considered as the basic provider of informal care to the elderly. The aim of the present study is to give some insight into the resources of adult children providing care to their elderly, disabled parents. In order to acquire a comprehensive perception of the phenomenon, the authors chose an interpretavist paradigm and applied a phenomenographic method. 21 participants, aged 41–65, who were caregivers of their parents, took part in semi-structured interviews. Two main research problems were formulated: (1) How do the participants perceive their resources as caregivers of their elderly, disabled parents? (2) What kind of support related to the care of their parents do they consider essential? Results: The participants distinguish two main kinds of resources: internal (e.g. values, passions, feelings for parents, economic situation) and external (e.g. parents, family, friends, professionals, medical equipment and centers they have access to). The narratives of the participants also indicate a number of needs they experience. Implications for practice are discussed.
Źródło:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej; 2020, 29; 7-23
2300-391X
Pojawia się w:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
COUPLES DEALING WITH BREAST CANCER: THE ROLE OF HUSBANDS IN SUPPORTING THEIR WIVES
Autorzy:
Zierkiewicz, Edyta
Mazurek, Emilia
Powiązania:
https://bibliotekanauki.pl/articles/647092.pdf
Data publikacji:
2015
Wydawca:
Akademia Górniczo-Hutnicza im. Stanisława Staszica w Krakowie
Tematy:
breast cancer survivors, spouses, men as caregivers
Opis:
Aim: The main goal of the article is to showcase how husbands performed the role of caregivers for their wives after breast cancer diagnosis. The researchers analysed this issue by comparing the perspectives of the male caregivers with their wives’ opinions. The wives were active members of Amazon clubs. Background: Partners of women with breast cancer are expected to assume responsibility for taking care of their wives. Simultaneously, however, they are not prepared to fulfil their new duties, nor are they being provided with any professional support in this regard. Method: Semi-structured interviews were conducted with eight married couples, separately with wives and husbands. Results: Husbands perceive their role in their wives’ struggles as primarily supportive and channel any negative emotions via undertaken actions. They support their wives in four ways: by focusing on their wives’ feelings and caring about her, taking part in the healing process, manag- ing the household during the period of their wives’ recovery, and by bringing back normalcy into their lives. Conclusions: Limited knowledge about oncological diseases, deficiencies in the assistance services offered to husbands of women with breast cancer and stereotypes about gender roles contribute to the difficulties men face when taking care of their sick wives. Even the wives active participation in the Amazon movement does not seem to mitigate their problems. 
Źródło:
Studia Humanistyczne AGH; 2015, 14, 2
2084-3364
Pojawia się w:
Studia Humanistyczne AGH
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Towards caring for caregivers: assessing the burden of care and experience of associative stigma among caregivers of patients with chronic mental illnesses at a mental health care facility in Lagos Metropolis, Nigeria
Autorzy:
Olagundoye, Olawunmi
Akhuemokhan, Victor
AluGo, Morenike
Powiązania:
https://bibliotekanauki.pl/articles/552312.pdf
Data publikacji:
2017
Wydawca:
Stowarzyszenie Przyjaciół Medycyny Rodzinnej i Lekarzy Rodzinnych
Tematy:
mental illness
family
caregivers
burden
stigma.
Źródło:
Family Medicine & Primary Care Review; 2017, 2; 149-155
1734-3402
Pojawia się w:
Family Medicine & Primary Care Review
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Wsparcie społeczne, samoocena i jakość życia nieformalnych opiekunów osób starszych
Autorzy:
Pyszkowska, Anna
Naczyński, Michał
Powiązania:
https://bibliotekanauki.pl/articles/2157641.pdf
Data publikacji:
2015
Wydawca:
Instytut Studiów Międzynarodowych i Edukacji Humanum
Tematy:
informal caregivers
elderly people
comparative research
Opis:
Aging society challenges with questions of not only how but mostly who will take care of an increasing number of elderly people. Research shows that the care situation causes stress, sense of isolation and depression amongst caregivers who most frequently are family members. The aim of this study was to examine differences between informal caregivers and control group of non-caregivers consisted of 78 participants aged 35 60. The study compared variables including social support from family, friends and professionals and self-esteem. The investigation showed no statistically significant differences between groups. It is assumed that cultural factors played a significant role in given results as further research is required.
Źródło:
Społeczeństwo i Edukacja. Międzynarodowe Studia Humanistyczne; 2015, 2(17); 265-276
1898-0171
Pojawia się w:
Społeczeństwo i Edukacja. Międzynarodowe Studia Humanistyczne
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Świadczenie pielęgnacyjne – pomoc czy dyskryminacja?
Nursing benefit - help or discrimination?
Autorzy:
Siemaszko, Anna
Powiązania:
https://bibliotekanauki.pl/articles/28409736.pdf
Data publikacji:
2022-10-27
Wydawca:
Akademia Pedagogiki Specjalnej im. Marii Grzegorzewskiej. Wydawnictwo APS
Tematy:
niepełnosprawność
opiekunowie
pomoc społeczna
disability
caregivers
social assistance
Opis:
Świadczenie pielęgnacyjne jest jedną z form pomocy opiekunom osób z niepełnosprawnością. Tym samym wypełniana jest zasada pomocy państwa osobom, które nie są w stanie samodzielnie podołać napotkanym trudnością. Pomoc rządowa jest konstytucyjnym obowiązkiem państwa. Innym równie ważnym zadaniem polityki społecznej jest równe traktowanie wszystkich obywateli. Przyznawanie świadczenia pielęgnacyjnego stoi w sprzeczności z zasadą równości. Zapisy ustawy o świadczeniach rodzinnych wyłączają bowiem z kręgu osób uprawionych dorosłe osoby, u których niepełnosprawność powstała po ukończeniu 18. roku życia. Tak stworzona ustawa narusza zasadę równości wszystkich obywateli. Potwierdza to wyrok Trybunału Konstytucyjnego, a także wiele innych orzeczeń sądowych przyznających prawo do świadczenia pielęgnacyjnego osobom teoretycznie nieuprawionym. Artykuł jest syntetycznym przedstawieniem, czym jest świadczenie pielęgnacyjne, dlaczego zostało wprowadzone kryterium wiekowe powstania niepełnosprawności, a także ukazuje luki prawne, z których korzystają osoby, aby uzyskać prawo do w/w świadczenia. Przedstawione w artykule kwestie są jedynie wycinkiem obszernego tematu, od 2013 r. toczą się bowiem dyskusje podające w wątpliwość obowiązujące świadczenie, a wprowadzane nowelizacje nadal nie przyniosły oczekiwanych efektów.
Nursing benefit is one of the forms of help for caregivers of people with disabilities. Thus, the principle of state aid to people who are not able to cope with the difficulties encountered is fulfilled. Government assistance is a constitutional obligation of the state. Another equally important task of social policy is the equal treatment of all citizens. Granting the nursing benefit is contrary to the principle of equality. The provisions of the Law on family benefits exclude from the circle of eligible adult persons who became disiabled after the age of 18. The law thus created violates the principle of equality of all citizens. This is confirmed by the judgment of the Constitutional Tribunal, as well as many other court decisions granting the right to the nursing benefit to theoretically unauthorized persons. The article is a synthetic presentation of what the nursing benefit is, why the age criterion of the emergence of disability has been introduced, and it also shows the legal gaps used by people to obtain the right to the above-mentioned benefit. The issues presented in the article are only a fragment of an extensive topic, as since 2013 discussions have been taking place which question the existing benefit, and the introduced amendments have still not brought the expected results.
Źródło:
Praca Socjalna; 2022, 37(3); 139-156
0860-3480
Pojawia się w:
Praca Socjalna
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
The relationship between stress and suicidal ideation in family members caring for a patient with acquired brain injury
Autorzy:
Schlebusch, Lourens
Walker, Janet
Powiązania:
https://bibliotekanauki.pl/articles/1031937.pdf
Data publikacji:
2020
Wydawca:
Przedsiębiorstwo Wydawnictw Naukowych Darwin / Scientific Publishing House DARWIN
Tematy:
acquired brain injury
caregivers
stress
suicidal ideation
Opis:
The aim of this study was to investigate the relationship between stress and suicidal ideation in family members who care for a patient with acquired brain injury (ABI). The sample consisted of 80 family carers who are members of Headway Gauteng (the brain injury association) located in Johannesburg, South Africa. Most of the research participants were primary caregivers (72.5%) with secondary caregivers making up a smaller percentage (27.5%). Secondary caregivers tend to perform the role of assisting and supporting the primary caregiver. Stress levels were measured, and a global stress score was obtained for each research participant. This global stress score included individual scores for physical, psychological and behavioural symptoms of stress for each participant. Both global and individual stress scores were correlated with answers to Question nine of the Beck’s depression inventory. The correlation between stress and suicidal ideation was significant, with data showing that suicidal ideation directly increased with increasing levels of stress.
Źródło:
World Scientific News; 2020, 140; 156-171
2392-2192
Pojawia się w:
World Scientific News
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Caregivers’ Perception of Enablers and Barriers to Home Exercise Programme (Hep) Adherence Among Nigerian Stroke Survivors: a Qualitative Study
Autorzy:
Ademoyegun, Adekola B.
Mbada, Chidozie E.
Afolabi, Olubukola E.
Adelowokan, Omotola I.
Adeoye, Bobola M.
Awotidebe, Taofeek O.
Powiązania:
https://bibliotekanauki.pl/articles/2159496.pdf
Data publikacji:
2021-12-31
Wydawca:
Politechnika Opolska. Wydział Wychowania Fizycznego i Fizjoterapii
Tematy:
stroke
caregivers
home exercise programme
enablers
barriers
Opis:
Background and objective: Stroke survivors often rely on caregivers to perform their Home Exercise Programme (HEP); however, little is known about enablers and barriers to HEP adherence from caregivers’ perspective. This study aims to explore the caregivers’ perspectives on the enablers and barriers to HEP adherence among stroke survivors. Methods: Fourteen caregivers of stroke survivors receiving physiotherapy at a Nigerian university teaching hospital were interviewed for the purpose of a qualitative study. An in-depth interview was used to explore respondents’ perspectives on enablers and barriers to HEP adherence. The gathered data was transcribed verbatim and analyzed. Results: The caregivers were mostly women (8/14) and close family members of the stroke survivors. In their opinion the main HEP adherence enablers were motivation and expectation, positive outcome and experience, availability of social support, timing, and religious beliefs. Overall health and wellness, caregiver’s schedule, negative emotions, and fear of falling were the dominant perceived barriers to HEP adherence. Conclusion: Home exercise programme adherence by stroke survivors is determined by a number of factors, including caregiver-related ones. It is necessary to pay close attention to all undercurrents of HEP adherence related to stroke survivors and their caregivers.
Źródło:
Journal of Physical Education & Health - Social Perspective; 2021, 10, 18; 14-27
2084-7971
Pojawia się w:
Journal of Physical Education & Health - Social Perspective
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Jadłowstręt psychiczny jako przejaw tendencji autodestruktywnych w świetle wybranych koncepcji psychodynamicznych – w stronę promocji wiedzy wśród rodziców i opiekunów
Anorexia Nervosa as a Manifestation of Self-Destructive Tendencies in the Light of Selected Psychodynamic Concepts – Towards the Promotion of Knowledge among Parents and Caregivers
Autorzy:
Cichecka-Wilk, Małgorzata
Powiązania:
https://bibliotekanauki.pl/articles/16539539.pdf
Data publikacji:
2021-05-25
Wydawca:
Polska Akademia Nauk. Komitet Nauk Pedagogicznych PAN
Tematy:
anorexia nervosa
self-destruction
psychodynamic concepts
parents and caregivers
Opis:
Anorexia nervosa, which is one of the forms of eating disorders, can be considered as a manifestation of a long and very complex process of self-destruction. Although its genesis is usually associated with puberty problems, it is rarely a rapid phenomenon. It should be treated rather as a kind of epilogue of one’s personal history. Malnutrition and weight control appearing in its context are in fact a manifestation of an attempt to cope with the hardships experienced by individual. Therefore, the anorexia nervosa is not just a problem of weight or eating habits, but it’s a way of manifesting the internal problem of the individual. Its form, defined by the otherwise valid canons of beauty or success, and consolidated by behaviours learned during the use of slimming diets, is revealed, however, in connection with specific personality traits. That is why the importance of people with this disorder, to a large extent, of tendencies to self-destructive behaviour, leading more or less consciously to self-destruction and in extreme cases to death, is emphasized. The article deals with the problem of anorexia nervosa as a manifestation of self-destructive tendencies and the issue of factors and mechanisms conditioning the occurrence of self-destructive behaviour from the perspective of selected psychodynamic concepts, indicating the importance of the issue for the care and educational processes.
Źródło:
Rocznik Pedagogiczny; 2020, 43; 227-240
0137-9585
Pojawia się w:
Rocznik Pedagogiczny
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Quality of life and burden of informal caregivers providing care for patients with low function agility in the home environment
Autorzy:
Bartoszek, Agnieszka
Gałęziowska, Edyta
Ślusarska, Beata
Kachaniuk, Hanna
Piasecka, Katarzyna
Deluga, Alina
Domżał-Drzewiecka, Renata
Kocka, Katarzyna
Nowicki, Grzegorz
Powiązania:
https://bibliotekanauki.pl/articles/552318.pdf
Data publikacji:
2019
Wydawca:
Stowarzyszenie Przyjaciół Medycyny Rodzinnej i Lekarzy Rodzinnych
Tematy:
quality of life
caregivers
home nursing
burnout
psychological.
Opis:
Background. Providing care to patients with low function agility in the home environment becomes a burden and leads to the worsening of the informal caregiver’s quality of life. Objectives. Aim of the research was to assess the quality of life of informal caregivers in the context of their burden linked to the care provided to chronically ill patients with low function agility in the home environment. Material and methods. Research was conducted in five public healthcare facilities, from September 2016 until February 2017, and included 138 informal caregivers. The WHOQoL-AGE scale was used to assess caregivers’ quality of life, and the COPE Index was employed to assessed caregivers’ burden. Results. According to WHOQoL-AGE, the average value of caregivers’ quality of life was 70.14 points. Caregivers’ burden according to the COPE Index Negative Impact of Care subscale was: M = 11.80; Positive Value of Care subscale: M = 13.71; and in Quality of Support subscale: M = 12.46. Statistical importance was at p ≤ 0.01 for WHOQoL-AGE scale, and the burden according to the COPE Index. Conclusions. Informal caregivers’ quality of life according to the WHOQoL-AGE scale corresponds significantly with caregivers’ burden according to the COPE-Index, in all of the analysed domains. Along with the increase of the negative influence of the care, general quality of life with all its subscales, as well as satisfaction, decreases. Caregivers’ quality of life increases along with the increase of the satisfaction connected to the provided care, and with receiving support from informal and formal healthcare
Źródło:
Family Medicine & Primary Care Review; 2019, 1; 12-16
1734-3402
Pojawia się w:
Family Medicine & Primary Care Review
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
QUALITY OF LIFE AMONGST CARE GIVERS FOR PATIENTS WITH PARKINSON’S DISEASE
Autorzy:
Cholewa, Joanna
Rychły, Anna
Rafalska, Beata
Cholewa, Jarosław
Powiązania:
https://bibliotekanauki.pl/articles/449162.pdf
Data publikacji:
2016
Wydawca:
Politechnika Opolska. Wydział Wychowania Fizycznego i Fizjoterapii
Tematy:
Parkinson’s disease
quality of life
caregivers
life satisfaction
Opis:
Parkinson’s disease (PD) is a neurodegenerative disease. Due to a constantly growing rate of incidence and the lowering age of PD patients it is becoming a more serious social problem. The aim of this study is to assess the quality of life amongst care givers for people suffering from Parkinson's disease. The work includes research on the influence of physical rehabilitation of PD patients on the quality of life of their care givers. The research covered care givers (n=50) of PD patients diagnosed with third stage PD according to the Hoehn and Yahr classification. The diagnostics survey with a questionnaire addressed to care givers looking after PD patients was used. The questionnaire was created by the authors of this paper. The survey consisted of two parts, in which the first was to obtain basic information on the present status of the care giver, while the other was to verify life satisfaction level, using Jurczynski's Scale of Life Satisfaction. Statistical analysis showed significant differences in all analyzed statements between groups. Better effects were observed in the group participating in rehabilitation. Care for people suffering from PD affects the quality of life of caregivers. Participation in the process of rehabilitation of patients with PD improves the quality of life of caregivers.
Źródło:
Journal of Physical Education & Health - Social Perspective; 2016, 5, 7; 47-53
2084-7971
Pojawia się w:
Journal of Physical Education & Health - Social Perspective
Dostawca treści:
Biblioteka Nauki
Artykuł
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