Temat: biobank - Katalog OPAC zbiorów

Skocz do pozycji: 1.

Tytuł:: The European Bank for Induced Pluripotent Stem Cells (EBiSC): Opportunities & Challenges Through Public-Private Collaboration
Autorzy:: C, George, Carol
Powiązania:: https://bibliotekanauki.pl/articles/902879.pdf
Data publikacji:: 2018-06-22
Wydawca:: Uniwersytet Warszawski. Wydawnictwa Uniwersytetu Warszawskiego
Tematy:: private sector
collaboration across the public and private sectors
biobank
pluripotent stem cells
sektor prywatny
partnerstwo publiczno-prywatne
pluripotencjalne komórki macierzyste
Opis:: The European Bank for induced Pluripotent Stem Cells is a global iPSC research resource designed to overcome inadequacies in iPSC research and banking services in order to make a diverse collection of quality-controlled iPS cell lines and genetic data easily accessible to researchers in Europe and worldwide. Opened to the public in 2016, EBiSC is a joint undertaking of the Innovative Medicines initiative of the European Commission, and the European Federation of Pharmaceutical Institutes and Associations (EFPIA), in collaboration with a consortium of international experts from the iPSC community in academia, government and business. The paper identifies opportunities for this largescale resource through collaboration across the public and private sectors, and highlights challenges encountered during its establishment with regard to cell line provenance, a multiplicity of actors and interests, intellectual property rights restrictions, ownership of banked material, and management of access to genetic data.
Źródło:: Studia Iuridica; 2018, 73; 29-41
0137-4346
Pojawia się w:: Studia Iuridica
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 2.

Tytuł:: Survey design method – the key component of building the Polish Biobanking Network
Autorzy:: Paluch, Angelika
Chróścicka, Anna
Powiązania:: https://bibliotekanauki.pl/articles/1197572.pdf
Data publikacji:: 2021-05-25
Wydawca:: Gdański Uniwersytet Medyczny
Tematy:: biobank
biobanking
data
survey
survey design
Opis:: The Polish Biobanking Network was created to connect Polish biobanks and gain information about their collections, thus facilitating their cooperation both in the national and international area. Based on MIABIS (Minimum Information About BIobank data Sharing) and considering the specificity of the Polish scientific community, two surveys were created. The aim of the first survey was to collect general information about Polish biobanks, e.g. their localization and type of collected material. The second survey was more detailed and concerned the biobank’s structure, information about collected material, willingness to share the collected material, implementation of an informatics system. Significant information about Polish biobanks could be obtained through appropriate recognition of the biobank’s scope of practice and correctly asked questions. The analysis of collected results could give a full picture of Polish biobanks.
Źródło:: European Journal of Translational and Clinical Medicine; 2021, 4, 1; 65-70
2657-3148
2657-3156
Pojawia się w:: European Journal of Translational and Clinical Medicine
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 3.

Tytuł:: Physician scientist: clash of patient rights and principles of conducting research
Autorzy:: Krekora-Zając, Dorota
Powiązania:: https://bibliotekanauki.pl/articles/48547686.pdf
Data publikacji:: 2023-06-22
Wydawca:: Uniwersytet Warszawski. Wydawnictwa Uniwersytetu Warszawskiego
Tematy:: doctor’s responsibility
patient rights
biobank
research on human biological material
consent
freedom of science
trust
Opis:: Conducting scientific research, learning about the etiology of diseases, and searching for new methods of treatment are undoubtedly the basis of medicine. For centuries, a doctor has been a person who not only treated people, but also conducted scientific research aimed at deepening the knowledge about man. Due to the development of genetics, the pharmaceutical industry, and biobanks, this research has become mass and sometimes it is only human biological samples that are sufficient to carry it out. All this, undoubtedly, enables faster development of science, but puts a doctor in an extremely difficult situation of playing two roles, i.e. treating the patient and conducting scientific research using one’s biological material. In medical law, it has been emphasized for years that the basis of the relationship between a doctor and a patient is a special type of trust, which is systemically protected both by national and international legislature. The doctor is, therefore, obliged to act for the benefit of the patient. There is no doubt, however, that when conducting scientific research, a doctor sometimes faces the rivalry of patient rights, including the right to privacy and the right to freedom to conduct research. Both European and national lawmakers seem to notice these problems only partially, and only partially regulate the issue in question in both medical and personal data protection law. The subject of the reported research was analysis of the European and Polish law in terms of determining the extent to which this conflict of interests affects the patient’s rights and the doctor’s duties. In addition, the subject of analysis was to determine whether the person who gave a biological sample to the doctor to conduct research on it is always a patient and what consequences for the doctor’s legal liability this research on human biological samples has.
Źródło:: Studia Iuridica; 2022, 95; 241-263
0137-4346
Pojawia się w:: Studia Iuridica
Dostawca treści:: Biblioteka Nauki

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Skocz do pozycji: 4.

Tytuł:: Biobank Łódź – population based biobank at the University of Łódź, Łódź, Poland
Autorzy:: Dobrowolska, Sylwia
Michalska-Madej, Joanna
Słomka, Marcin
Sobalska-Kwapis, Marta
Strapagiel, Dominik
Powiązania:: https://bibliotekanauki.pl/articles/895829.pdf
Data publikacji:: 2019-06-04
Wydawca:: Gdański Uniwersytet Medyczny
Tematy:: biobank
population biobank
sample quality control
BBMRI-ERIC
data
Opis:: Biobank Laboratory of the University of Lodz is a unit in the organizational structure of the Department of Molecular Biophysics at the Faculty of Biology and Environmental Protection. It was established in 2014 as one of the results of the TESTOPLEK project. One of the main goals of the unit is to collect and share biological material of human origin and related clinical and survey data. Moreover, Biobank Laboratory conducts work in the field of genetics and molecular biology on human biological material. Biobank Laboratory gathers over 40.000 samples such as DNA, FFPE, saliva, together with their data. Data about collections is available for researchers in directories e.g. BBMRI-ERIC Directory 4.0. Since 2014, the unit belongs to the national Consortium BBMRI.pl, and since 2017 it executes a project entitled Research Infrastructure for Biobanks and Biomolecular Resources BBMRI-ERIC, co-creating the Polish Network of Biobanks. Biobank Laboratory is focused on cooperation with domestic and foreign scientific institutions and medical units, as well as entities from the local, business and public sector.
Źródło:: European Journal of Translational and Clinical Medicine; 2019, 2, 1; 85-95
2657-3148
2657-3156
Pojawia się w:: European Journal of Translational and Clinical Medicine
Dostawca treści:: Biblioteka Nauki

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