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Tytuł:
Child with Down Syndrome in a peer group.
Autorzy:
Jędrzejowska, Agnieszka
Powiązania:
https://bibliotekanauki.pl/articles/941275.pdf
Data publikacji:
2019-12-15
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
peer group
Down syndrome
integration
Opis:
The attitude towards people with disabilities has changed over the last century. Both deinstitutionalisation as well as integration and normalisation allowed many people with intellectual disabilities to improve their social situation. An example of such a systemic solution supporting the development of disabled persons are integration groups. The subject of this article is a report from a pilot study on the functioning of a group of children with Down syndrome within an integration group. The objective of this study was the presentation of the reasonability of inclusion within the integration group of children with Down’s Syndrome (with the homogeneous dysfunction). Observation and sociometric tests covered children with Down syndrome from two integration groups from kindergarten no. 109 in Wrocław, Poland. I consider the essence of integration, following A. Maciarz, to be the feeling of social bonds experienced by a disabled individual, a sense of belonging to a group, as well as the conviction that one is accepted by it, despite the fact that the standards adopted by their community are not always and not fully met by them. The research was carried out for six months in a kindergarten where I was a special educator.
Źródło:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej; 2019, 27; 351-372
2300-391X
Pojawia się w:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Potencjał intelektualny uczniów z zespołem Downa i orzeczoną niepełnosprawnością intelektualną w opinii ich rodziców
Intellectual potential of pupils with Down syndrome and diagnosed intellectual disability in the opinion of their parents
Autorzy:
Popowska, Krystyna
Powiązania:
https://bibliotekanauki.pl/articles/2194829.pdf
Data publikacji:
2021-04-26
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
intellectual potential
Down syndrome
intellectual disability
Opis:
Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy. 
Źródło:
Kultura-Społeczeństwo-Edukacja; 2020, 18, 2; 393-396
2300-0422
Pojawia się w:
Kultura-Społeczeństwo-Edukacja
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
“Life Goes On” – everyday life of children with Down syndrome and their families – selected aspects.
Autorzy:
Lipińska-Lokś, Jolanta
Powiązania:
https://bibliotekanauki.pl/articles/941565.pdf
Data publikacji:
2020-12-15
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
Down syndrome
child
family
everyday life
Opis:
The birth of a child is a major event in family life, which makes parents take on an important role in their lives, characterised by new tasks, chief among which are the care and upbringing of their offspring. Unfortunately, in many families, some factors emerge that may affect their functioning, disrupt the course of family life, and leave a permanent mark on the family’s history. Such a situation can be difficult for many –and many parents find the process of accepting a child with a disability (Down syndrome) and themselves as parents of a child with Down syndrome a long and arduous journey, since taking care of a child, upbringing and supporting their development is an issue in itself, but also a challenge for parents. In many cases, both the child and their parents need support in their daily life, ensuring their high quality of life. The objective of this study is to outline the functioning of families of children with Down syndrome. Due to the complex nature of the issue at hand, only selected aspects of the functioning of families were diagnosed, showcasing the changes in the family life and its functioning as a result of the birth of children with Down syndrome. The study was based on qualitative methodologies, by analysing individual cases using interview technique and interview dispositions. The research group comprised 10 families of children with intellectual disabilities, and the interviewed group was made up of 10 mothers and 3 fathers in Zielona Góra.
Źródło:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej; 2020, 31; 127-147
2300-391X
Pojawia się w:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Intellectual potential of pupils with Down syndrome and diagnosed intellectual disability in the opinion of their parents
Autorzy:
Popowska, Krystyna
Powiązania:
https://bibliotekanauki.pl/articles/2194828.pdf
Data publikacji:
2020-12-30
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
intellectual potential
Down syndrome
intellectual disability
Opis:
Research was conducted to find out about the parents’ opinions on the intellectual potential of their children with Down syndrome and diagnosed intellectual disability studying in 4–8 grades of common, integration and special schools. Additionally, the factors determining the respondents’ opinions were analyzed. The paper uses the author’s questionnaire was placed on groups for parents of children with Down syndrome on the social network site Facebook. In addition, surveys were sent by e-mail to the primary school districts and non-governmental organizations that help children with Down syndrome. Fifty two questionnaires were collected. The results indicate that, despite intellectual disability, parents recognize the intellectual potential of their children. It can be assumed that assessments of the intellectual potential of students with Down syndrome and diagnosed intellectual disability are determined by their siblings in the intellectual norm, gender, using verbal speech, communication skills, social skills and opinions of their parents about their successes in school and progress as a result of the therapy. 
Źródło:
Kultura-Społeczeństwo-Edukacja; 2020, 18, 2; 397-410
2300-0422
Pojawia się w:
Kultura-Społeczeństwo-Edukacja
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
The relationships between perceived stress and psychological well-being among mothers and fathers of children with Down syndrome
Autorzy:
Kózka, Anna
Przybyła-Basista, Hanna
Powiązania:
https://bibliotekanauki.pl/articles/2004956.pdf
Data publikacji:
2016-06-30
Wydawca:
Wydawnictwo Adam Marszałek
Tematy:
children
parents
Down syndrome
stress
well-being
Opis:
The aim of this study was to investigate the relationship between perceived stress and psychological well-being among parents of children with down syndrome. The relationship between perceiving one’s parenthood and well-being was also studied. The sample consisted of 126 parents (75 mothers and 51 fathers, aged 25-69) of children with down syndrome. our results show that ego-resiliency is a partial mediator of the relationship between perceived stress and psychological well-being. Moreover, there is a difference in well-being between parents who perceive their parenthood as a burden or challenge, and parents who report happiness and satisfaction.
Źródło:
The New Educational Review; 2016, 44; 285-294
1732-6729
Pojawia się w:
The New Educational Review
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Zabawa we wczesnej terapii logopedycznej u dzieci z zespołem Downa
Games in early speech therapy of children with Down syndrome
Autorzy:
Kaptur, Ewa
Powiązania:
https://bibliotekanauki.pl/articles/1044561.pdf
Data publikacji:
2019-12-15
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
early speech therapy
Down syndrome
games and speech
Opis:
The concept of early speech therapy by a team of therapists of different specializations, including a speech and language pathologist, assumes a holistic approach to an infant’s development. Children with Down syndrome require the help of a speech and language pathologist since the first day of their lives. The article describes activating the child’s speech by incorporating games into the therapy.
Źródło:
Poznańskie Studia Polonistyczne. Seria Językoznawcza; 2019, 26, 2; 87-101
1233-8672
2450-4939
Pojawia się w:
Poznańskie Studia Polonistyczne. Seria Językoznawcza
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Bioelements in hair of children with selected neurological disorders
Autorzy:
Józefczuk, Jan
Kasprzycka, Wiktoria
Czarnecki, Rafał
Graczyk, Alfreda
Józefczuk, Paweł
Krzysztof, Magda
Lampart, Urszula
Mrozowska-Ząbek, Ewa
Surdy, Weronika
Kwiatkowska-Graczyk, Róża
Powiązania:
https://bibliotekanauki.pl/articles/1038647.pdf
Data publikacji:
2017
Wydawca:
Polskie Towarzystwo Biochemiczne
Tematy:
bioelements
epilepsy
Down's syndrome
cerebral palsy
hair
children
Opis:
We have analyzed concentrations of magnesium (Mg), calcium (Ca), copper (Cu), zinc (Zn) and iron (Fe) in hair of a group of 82 children with mental retardation, in which 9 patients suffered from epilepsy, 18 from the Down's syndrome and 55 from cerebral palsy. Girls comprised little over 50% of the patients. In the group of boys with epilepsy, we found Mg, Ca, Cu and Fe deficiency, and normal level of Zn. In the group of girls with epilepsy, apart from low Fe concentration, a high level of Ca, Mg, Zn, and Cu was noted. For girls with the Down's syndrome, a high or normal level of Ca, Mg, Zn and Cu was found, whereas the Fe concentration varied and presented itself in a non-characteristic way. Both groups of children with cerebral palsy, i.e. boys and girls, displayed low Fe concentration in their hair; low Cu level was found in older patients as well. In this group of patients, we also noted high concentrations of Ca, Mg and Zn in girls and normal in boys. A high concentration of Ca in girls with cerebral palsy requires separate analysis. The obtained results could be useful as guidance in the direction and determination of the amount of possible patient nutritional supplementation.
Źródło:
Acta Biochimica Polonica; 2017, 64, 2; 279-285
0001-527X
Pojawia się w:
Acta Biochimica Polonica
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Ego-Resiliency and Parental Satisfaction Among Parents of Children with Down Syndrome
Autorzy:
Kózka, Anna
Przybyła-Basista, Hanna
Powiązania:
https://bibliotekanauki.pl/articles/1998241.pdf
Data publikacji:
2017-06-30
Wydawca:
Wydawnictwo Adam Marszałek
Tematy:
children
parents
Down syndrome
ego-resiliency
parental satisfaction
Opis:
Parents of children with Down syndrome face many challenges related to their children’s disability. They manage to raise their children primarily thanks to their internal resources, protective psychological traits and help from other people. The aim of this study was to investigate the level of ego-resiliency as an important personality trait in a group of mothers and fathers of children with Down syndrome. The relationship between ego-resiliency and parental satisfaction was also studied. The sample consisted of 126 parents (75 mothers and 51 fathers). Our results show that there is no difference in the level of ego-resiliency between mothers and fathers of children with Down syndrome. Nevertheless, it is noticed that there is a difference in perceived stress, psychological well-being and some aspects of parental satisfaction between parents with high and low levels of ego-resiliency. These results give an interesting insight into the internal func- tioning of parents of children with Down syndrome.
Źródło:
The New Educational Review; 2017, 48; 239-249
1732-6729
Pojawia się w:
The New Educational Review
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Wsparcie społeczne jako czynnik ochronny dla rodziców dzieci z zespołem Downa
Autorzy:
Kózka, Anna
Przybyła-Basista, Hanna
Powiązania:
https://bibliotekanauki.pl/articles/2157772.pdf
Data publikacji:
2016
Wydawca:
Instytut Studiów Międzynarodowych i Edukacji Humanum
Tematy:
social support
protection
social exclusion
parents
children
Down syndrome
Opis:
Results of many studies show that caring for a child with Down syndrome can be a source of burden. Parents of these children face many financial, medical, social and psychological challenges. The main objective of this study was to answer two questions: (a) whether perceived social support mediates the relationship between perceived stress and psychological well-being among parents of children with Down syndrome, (b) whether there is any difference in the level of perceived stress between parents who conceive their parenthood in different categories such as burden or satisfaction-happiness. Data were collected from a total sample of 126 parents (75 mothers and 51 fathers). Mediation analysis has shown that social support is a partial mediator between perceived stress and psychological well-being in the group of parents of children with Down syndrome. Moreover, parents who viewed their parenthood as a burden reported a lower level of perceived social support than parents who reported their parenthood as satisfaction-happiness. This study can be helpful in a better understanding of the role of social support in the process of raising a child with Down syndrome.
Źródło:
Społeczeństwo i Edukacja. Międzynarodowe Studia Humanistyczne; 2016, 1(20); 139-150
1898-0171
Pojawia się w:
Społeczeństwo i Edukacja. Międzynarodowe Studia Humanistyczne
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Rehabilitacja dzieci z zespołem Downa – doświadczenia rodziców
Physical rehabilitation of children with Down syndrome – parents’ experience
Autorzy:
Chowaniec-Rylke, Anna
Powiązania:
https://bibliotekanauki.pl/articles/1810296.pdf
Data publikacji:
2018
Wydawca:
Stowarzyszenie Antropologiczne Archipelagi Kultury
Tematy:
Down syndrome
medical anthropology
physiotherapy
biomedical system
agency
parenthood
Opis:
This article aims at discussing experiences of parents whose child was diagnosed with Down syndrome. It is based on a two-year fieldwork research in large cities in Poland that included in-depth interviews with families and discourse analysis of Internet sources. Down syndrome is one of the most common genetic disorders, caused by the presence of a third copy of chromosome 21. Due to genetic nature of the disorder, there is no known cure for DS. Low muscle tone and mental impairment are one of the most common symptoms. In this article I examine the role of the physiotherapy in lives of DS children parents. Their children may never be fully functioning intellectually, but in most cases their physical development, however delayed, will be successful. I argue that the mother dedication in finding new methods of improving their children physical abilities may be seen as a way of regaining agency and acceptance.
Źródło:
Barbarzyńca. Pismo Antropologiczne; 2018, 23; 102-117
1643-9708
Pojawia się w:
Barbarzyńca. Pismo Antropologiczne
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Wspieranie rodzin dzieci z niepełnosprawnością – perspektywa zmiany
Supporting families of children with disabilities – the prospect of change
Autorzy:
Żyta, Agnieszka
Ćwirynkało, Katarzyna
Powiązania:
https://bibliotekanauki.pl/articles/2086066.pdf
Data publikacji:
2015
Wydawca:
Uniwersytet Wrocławski. Wydział Nauk Historycznych i Pedagogicznych. Instytut Pedagogiki. Zakład Historii Edukacji
Tematy:
wsparcie
niepełnosprawność
rodzina
zespół Downa
supporting
disability
family
Down syndrome
Opis:
W artykule podsumowano dokonujące się w Polsce i na świecie zmiany w zakresie wsparcia społecznego udzielanego rodzinom dzieci z niepełnosprawnością. W części badawczej, wykorzystując wywiady pogłębione, prześledzono osobiste doświadczenia 11 matek dzieci z zespołem Downa, w kontekście systemu wsparcia społecznego. Transkrypcje wywiadów poddano obróbce jakościowej, z zastosowaniem interpretatywnej analizy fenomenologicznej. Wyłoniono kilka tematów: wsparcie skierowane na dziecko oraz wsparcie instrumentalne, informacyjne i emocjonalne, skierowane na rodziców (zarówno formalne, jak i nieformalne). Rodzice opisywali różne źródła otrzymywanego wsparcia, wskazując również na jego niedociągnięcia. Podkreślono duże znaczenie zaadaptowania nowoczesnego systemu wsparcia rodzin dzieci z niepełnosprawnością oraz wskazano na implikacje wynikające z zebranych danych.
The paper includes the summary of changes that take place in the field of social support given to families of children with disabilities in Poland and abroad. In the empirical part, using in-depth interviews, this study investigated the personal experiences of 11 mothers of children with Down syndrome within the social support system. Interview transcripts were qualitatively analysed with the usage of interpretative phenomenological analysis. Several themes emerged: support concentrated on a child with a disability as well as instrumental, informative, emotional support of parents (both formal and informal). Parents described various sources of the received support but also mentioned their shortcomings. The importance of adapting the modern model of supporting families of children with disabilities is highlighted and the implications of the findings are discussed.
Źródło:
Wychowanie w Rodzinie; 2015, XI, (1/2015); 377-396
2082-9019
Pojawia się w:
Wychowanie w Rodzinie
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
An 11-Year-Old Boy with Down Syndrome Phenotype and Partial Duplication in 21 Q11.2-Q21 Region
Autorzy:
CHOMIAK, PAWEŁ J.
JANECZKO, MAGDALENA
Powiązania:
https://bibliotekanauki.pl/articles/1034074.pdf
Data publikacji:
2011
Wydawca:
Uniwersytet Jagielloński. Wydawnictwo Uniwersytetu Jagiellońskiego
Tematy:
DOWN SYNDROME
HR-CGH
PARTIAL DUPLICATION
QUANTITIVE FLUORESCENT REAL TIME PCR
Opis:
We report a clinical case of an 11-year-old boy with de novo partial duplication of chromosome 21st pair and some clinical features of Down syndrome. Using hr – CGH method (high resolution Comparative Genomic Hybridization) we detected a quantitative change (a duplication) in 21q21 – q11.2 region. To confirmed the results of hr-CGH analysis we used Quantitative Fluorescent Real Time PCR method with four primers for two different genes located in duplication region.
Źródło:
Zeszyty Naukowe Towarzystwa Doktorantów Uniwersytetu Jagiellońskiego. Nauki Ścisłe; 2011, 3; 53-57
2082-3827
2084-977X
Pojawia się w:
Zeszyty Naukowe Towarzystwa Doktorantów Uniwersytetu Jagiellońskiego. Nauki Ścisłe
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Umiejętności komunikacyjne dzieci z zespołem Downa
Communication Skills of Children with Down Syndrome
Autorzy:
Jędrzejowska, Agnieszka
Powiązania:
https://bibliotekanauki.pl/articles/1372681.pdf
Data publikacji:
2018-09-15
Wydawca:
Uniwersytet im. Adama Mickiewicza w Poznaniu
Tematy:
communication skills
peer grup
Down syndrome
alternative and augmentative communiaction (AAC)
Opis:
The purpose of this article is to present the results of research concern setting of functional cooperation with the interlocutor in children with Down syndrome in a peer group. Analysis of the results indicates the relationship between methods of therapy and development of children with Down syndrome. The methods of Alterantive and Augmentative Communication (AAC) are important in achieving success in building relationships for children with problems with verbal communication. Secondly, peer group is important to increase social skills. This research show that children with Downe syndrome need similar friends. This leads to the coclussion that group with homogeneous disability is area of development.
Źródło:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej; 2018, 22; 201-218
2300-391X
Pojawia się w:
Interdyscyplinarne Konteksty Pedagogiki Specjalnej
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Parental cooperation between mothers and fathers of children with down syndrome
Autorzy:
Jazłowska, Anna
Powiązania:
https://bibliotekanauki.pl/articles/1931912.pdf
Data publikacji:
2019
Wydawca:
Politechnika Śląska. Wydawnictwo Politechniki Śląskiej
Tematy:
parental cooperation
parenthood
children
Down syndrome
współpraca rodziców
rodzicielstwo
dzieci
zespół Downa
Opis:
When a child with intellectual disability (including Down syndrome) is born, the character of relations between the mothers and fathers change. A decrease in the available time becomes a challenge and numerous responsibilities impose parental cooperation. The aim of the present study was to answer the following questions that concern the cooperation between mothers and fathers of children with Down syndrome: (1) in what ways do mothers and fathers share their responsibilities focused around raising a child with Down syndrome, (2) how do mothers and fathers assess their own attitude towards taking care of their child, (3) how do parents perceive their spouses' attitude towards particular parental responsibilities. The study included 126 parents of children with Down syndrome. The results of the analyses conducted show that the parental responsibilities of mothers and fathers of children with Down syndrome are different, they are involved in taking care of their child to a different degree and evaluate their own strain as well as the changes in their lives differently.
Źródło:
Zeszyty Naukowe. Organizacja i Zarządzanie / Politechnika Śląska; 2019, 141; 133-146
1641-3466
Pojawia się w:
Zeszyty Naukowe. Organizacja i Zarządzanie / Politechnika Śląska
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Mapping of India’s contribution on “Down syndrome” during 40 years from 1973-2012
Autorzy:
Siwach, A.K.
Powiązania:
https://bibliotekanauki.pl/articles/10910.pdf
Data publikacji:
2015
Wydawca:
Przedsiębiorstwo Wydawnictw Naukowych Darwin / Scientific Publishing House DARWIN
Tematy:
mapping
India
Down's syndrome
human disease
genetic disease
1973-2012 period
bibliometrics
Opis:
Down syndrome, a genetic disease, is commonly diagnosed congenital malformation/mental retardation syndrome occurring in people of all races and economic levels. The present study is aimed to examine the contribution of Indian scientists on Down syndrome during the 40 years span from 1973-2012. The study analyses the Indian share in the research output, contribution and citation impact of top Indian institutions, most prolific Indian authors, top journals for publication, top collaborating countries, number of citations received and the highly cited papers in the Indian research on Down syndrome.
Źródło:
International Letters of Natural Sciences; 2015, 07
2300-9675
Pojawia się w:
International Letters of Natural Sciences
Dostawca treści:
Biblioteka Nauki
Artykuł
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