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Wyświetlanie 1-5 z 5
Tytuł:
Knowledge of parents of children with autism from Poland, Belarus and France concerning their child’s condition
Wiedza rodziców dzieci z autyzmem z Polski, Białorusi i Francji na temat choroby dziecka
Autorzy:
Ślifirczyk, A.
Krajewska-Kułak, E.
Krukowska, M.
Maciorkowska, E.
Powiązania:
https://bibliotekanauki.pl/articles/2053512.pdf
Data publikacji:
2019
Wydawca:
Akademia Bialska Nauk Stosowanych im. Jana Pawła II w Białej Podlaskiej
Tematy:
autism
parents
knowledge
autyzm
rodzicie
wiedza
Opis:
Background. Autism is not only a problem for p eople with autism, but also for their entire families. Material and methods. 83 families were analysed, including 30 families from Poland, 25 families from Belarus and 28 families from France, an author’s questionnaire was used. Results. The majority of respondents were aware of the fact that autism can also be diagnosed in an adult person. Likewise, the notion of the autistic spectrum was known. While parents from Poland and France realised that a one-time diagnosis of the condition is insufficient, parents from Belarus more often chose the incorrect answer, and therefore they express the tendency to immediately start a therapy without additional consultations. All respondents from France chose the statement that treatment of autism should be started before the age of 3, which was confirmed by the majority of respondents from the other two countries. Polish parents barely considered the importance of preparation required to understand their child’s behaviour, whereas this aspect of the therapy was indicated by almost 90% of the respondents from the other two countries. Parents from Poland (69%) and Belarus (76%) were mostly convinced that autism cannot be cured completely. A different opinion was expressed by 42.9% of parents from France, who were convinced about it. The Poles most willingly used the Internet as a source of knowledge, while the French and Belarusians - a psychologist. A paediatrician was a preferred educator in Poland, in Belarus and France - a psychologist. Conclusions. The parents of autistic children, regardless of the country, showed a low level of knowledge about autism. The vast majority of respondents declared a desire to deepen their knowledge on autism, expressing their preference to have an individual conversation with an educator.
Wprowadzenie. Autyzm nie jest problemem jedynie osób z autyzmem, ale również całych ich rodzin. Materiał i metody. Analizie poddano 83 rodziny, w tym 30 rodzin z Polski, 25 rodzin z Białorusi oraz 28 rodzin z Francji i wykorzystano kwestionariusz autorski. Wyniki. Większość ankietowanych wiedziała, że autyzm można zdiagnozować także u osoby dorosłej, znane było także pojęcie spektrum autystycznego. O ile rodzice z Polski i Francji zdawali sobie sprawę, że jednorazowa diagnoza choroby jest niewystarczająca, to rodzice z Białorusi częściej wybierali błędną odpowiedź, a więc natychmiastowe rozpoczęcie terapii bez dodatkowych konsultacji. Wszyscy ankietowani z Francji wybierali stwierdzenie, iż leczenie autyzmu należy zacząć przed 3 rokiem życia, co potwierdziło większość ankietowanych z pozostałych dwóch krajów. Rodzice z Polski ledwie w połowie za ważne uznali przygotowanie rodziców do zrozumienia zachowań dziecka, podczas gdy ten aspekt terapii wskazało niemal 90% ankietowanych z dwóch pozostałych krajów. Rodzice z Polski (69%) i Białorusi (76%) byli w większości przekonani, iż autyzmu nie można wyleczyć całkowicie. Odmienną opinię wyraziło 42,9% przekonanych o tym rodziców z Francji. Polacy najchętniej jako źródło wiedzy wykorzystywali Internet, Francuzi i Białorusini - psychologa. Za edukatora w Polsce preferowano pediatrę, na Białorusi i we Francji - psychologa. Wnioski. Rodzice dzieci autystycznych, niezależnie od kraju, wykazywali niski poziom wiedzy na temat autyzmu. Zdecydowana większość respondentów deklarowała chęć pogłębienia wiedzy na temat autyzmu preferując w tym celu rozmowę indywidualną z edukatorem.
Źródło:
Health Problems of Civilization; 2019, 13, 2; 114-122
2353-6942
2354-0265
Pojawia się w:
Health Problems of Civilization
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Assessment of parents’ ways of coping with critical situations
Autorzy:
Ślifirczyk, A.
Krajewska-Kułak, E.
Brayer, A.
Sobolewski, M.
Maciorkowska, E.
Powiązania:
https://bibliotekanauki.pl/articles/1917663.pdf
Data publikacji:
2016
Wydawca:
Uniwersytet Medyczny w Białymstoku
Tematy:
Autism
parents
Coping Inventory for Stress Situations
The General Self- Efficacy Scale
Opis:
Introduction: Stress experienced by parents of a disabled child can have a negative impact on family relationships. Purpose: Assessment of parents coping with critical situations. Materials and methods: We analyzed 83 families, including 30 families from Poland, 25 families from Belarus and 28 families from France and we used Coping Inventory for Stress Situations (CISS) and The General Self- Efficacy Scale (GSES). Results: After hearing the diagnosis most often parents felt shock (63.3% from Poland, 68% from Belarus and France 85.7%). Main parents' emotions induced by the disability was fatigue (76.7% from Poland, 44% from Belarus and 71.4% from France - p=0.028) and sadness (73.3% from Poland, 40% from Belarus and 28.6% from France - p=0.002). Most often in response to the annoying and stressful child’s behaviour parents tried to admonish (76.7% from Poland, 56% from Belarus and 75% from France) or shout at the child (66.7% from Poland, 24% from Belarus and 17.9% from France p <0.001). The least likely preferred style of coping with stress in all countries was the search for socializing. The highest rate of self-efficiency characterize parents from France, the lowest from Poland. Conclusions: The existence of factors which could significantly affect the level of burn-out syndrome in parents, such as the deterioration of the financial situation (mainly in Belarusian families), sadness, fatigue, insomnia (mainly in Polish families). Parents chose effective strategies of coping, and the predominant style was focused on the task. It has been shown that parents lack the ability to control negative emotions, which in particular affected Polish families (for example, domination of trials to admonish and explain, shouting at the child).
Źródło:
Progress in Health Sciences; 2016, 6(1); 116-122
2083-1617
Pojawia się w:
Progress in Health Sciences
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
The quality of life in parents raising children with an autism spectrum disorder from Poland, Belarus and France
Autorzy:
Ślifirczyk, A.
Krajewska - Kułak, E.
Brayer, A.
Sobolewski, M.
Maciorkowska, E.
Powiązania:
https://bibliotekanauki.pl/articles/1917772.pdf
Data publikacji:
2016
Wydawca:
Uniwersytet Medyczny w Białymstoku
Tematy:
autism spectrum disorder
children
parents
quality of life
Opis:
Purpose: To assess the health-related quality of life (HRQL) in parents of children with autism spectrum disorder (ASD). Materials and methods: The sample consisted of 83 families with children with ASD, including 30 families from Poland, 25 from Belarus, and 28 from France. Parental HRQL was surveyed with the World Health Organization Quality of Life–BREF (WHOQOL–BREF) and KINDLR questionnaires. Results: This study showed that Polish parents reported the lowest quality of life according to the WHOQOL–BREF. Parents from Belarus reported slightly worse HRQL than parents from France, though other aspects of quality of life (e.g, social sphere, somatic sphere) did not differ significantly between these parents. Parents from Poland also reported lower HQOL according to the KINDLR questionnaire, while parents from Belarus had a higher HQRL in the mental, physical, and self-esteem domains compared to parents from Poland and France. Conclusion: Parents from Poland with children with ASD reported lower HRQL both on the WHOQOL–BREF and KINDL R questionnaires compared to parents from Belarus and France.
Źródło:
Progress in Health Sciences; 2016, 6(1); 102-107
2083-1617
Pojawia się w:
Progress in Health Sciences
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
The assessment of empathic understanding and control of emotions in parents of children with autism
Autorzy:
Ślifirczyk, A.
Krajewska-Kułak, E.
Brayer, A.
Sobolewski, M.
Maciorkowska, E.
Powiązania:
https://bibliotekanauki.pl/articles/1917777.pdf
Data publikacji:
2016
Wydawca:
Uniwersytet Medyczny w Białymstoku
Tematy:
Autism
The Courtauld Emotional Control Scale
empathy
parents
Opis:
Introduction: Problems of families with autism are generally not visible or manifested, but without support, they become economically and educationally inefficient. Purpose: To assess the degree of empathic understanding of the child and the degree of emotional control by parents. Materials and methods: The study included 30 families from Poland, 25 from Belarus and 28 from France. We used Empathy Understanding Others questionnaire (KRE) and The Courtauld Emotional Control Scale (CECS). Results: The most common difficulty reported in the care of a child was gaining his/her independence (66.7% in Poland, 84% in Belarus, 78.6% in France). Parents from Poland more often (26.7%) than others (12% in Belarus, 3.6% in France) pointed out that the disability of a child caused that their friends turned their back to them. 40% of parents from Poland, 60% from Belarus and 57.1% from France claimed that the spouses accept the disability of the child. The disability induced in parents mainly fatigue (76.7% from Poland, 44% from Belarus, 71.4% from France). The level of empathy in Polish (64.2 ± 6.2) and French parents (64.8 ± 11.6) was almost identical, and the highest was among Belarusian parents (70.3 ± 8.3). Overall rate of CECS of the surveyed parents was at the average level (from Poland 47.4 ± 4.9; from Belarus 44.8 ± 6.1, from France 48.1 ± 6.0). Conclusions: Nurses evaluated their own preparation for educational activities usually very low. In the majority they would not want to take up the difficult role of educators of parents of autistic children. Due to a potential contact of a nurse with a child with autism and the child’s family, it is advisable to extend the knowledge of nurses in the care of a child with autism.
Źródło:
Progress in Health Sciences; 2016, 6(1); 108-115
2083-1617
Pojawia się w:
Progress in Health Sciences
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Selected risk factors for spastic cerebral palsy in a retrospective hospital–based case control study
Autorzy:
Kułak, P.
Maciorkowska, E.
Gościk, E.
Powiązania:
https://bibliotekanauki.pl/articles/1916535.pdf
Data publikacji:
2014
Wydawca:
Uniwersytet Medyczny w Białymstoku
Tematy:
Risk factors
cerebral palsy
retrospective study
Opis:
Introduction: Cerebral palsy (CP) is caused by damage to the motor control centers of the developing brain and can occur during pregnancy, during childbirth, or following birth. Purpose: To study the selected risk factors for spastic CP in a retrospective study involving children with CP. Materials and methods: The study population included 92 children with spastic CP. The analysis of data from the case records of both groups included the following: child’s age, gender, pregnancy order, birth order, type of birth, time of birth, Apgar scores, birth weight, epilepsy, and psychomotor development. Results: CP occurred more often in boys. A total of 27 children had congenital hemiplegia, 35 had diplegia, and 30 had spastic tetraplegia. The mean gestational age at birth for children with CP was 35.96 ± 4.2 weeks versus a mean of 39.2 ± 1.4 (p<0.001) for the control group. The mean number of pregnancies and deliveries for mothers of children with CP compared to the control group did not differ significantly. Vaginal births and cesarean sections in the group of children with CP and controls occurred in similar percentages. The birth weight of children with CP (2615.8 ± 935.1) was significantly lower than the birth weight among the control group (3343.2 ± 497) (p=0.04). Almost 40 percent of the children with CP were born to mothers who had preterm labours compared to only 5.2 percent of controls. A mean Apgar score for children with CP (5.9 ± 3.3) at 1 minute was significantly lower than that for children without CP (9.10 ± 1.5) (p<0.001). Of the children with CP, 20 percent had epilepsy; none of the children without CP had epilepsy; 22 percent had slight delays, 17 percent had moderate delays, and 12 percent had severe delays. Conclusions: Gender, prematurity, low birthweight, asphyxia and epilepsy were related to the development of CP.
Źródło:
Progress in Health Sciences; 2014, 4, 2; 7-13
2083-1617
Pojawia się w:
Progress in Health Sciences
Dostawca treści:
Biblioteka Nauki
Artykuł
    Wyświetlanie 1-5 z 5

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