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Tytuł:
Examination of the conformity of registry data before and after the modernization with the actual state in the field
Autorzy:
Mika, M.
Świątoniowska, D.
Kotlarz, P.
Powiązania:
https://bibliotekanauki.pl/articles/101215.pdf
Data publikacji:
2017
Wydawca:
Polska Akademia Nauk. Stowarzyszenie Infrastruktura i Ekologia Terenów Wiejskich PAN
Tematy:
modernization of land and building registry
registry data
registry plot
Opis:
The legal basis for the modernization of the land and building registry is the Act of 17 May 1989 Geodetic and Cartographic Law, which determines how the procedure of update and modification of data, to the form which is in accordance with applicable regulations, is carried out. Maintaining of the proper degree of timeliness and reliability of the registry data is important because of the prospect of integration with the Databases of Topographic Objects (BDOT) and Geodetic Registry of Infrastructural Network (GESUT), in the project of construction of the Real Estate Integrated Information System (ZSIN). Furthermore, the land and building registry (EGiB) plays a significant role in the implementation of most of the processes of real estate management. The aim of the publication is to verify the compliance of the registry data regarding the area and the course of the borders of plots before and after modernization, with the real state in the field. The complex survey of plots before and after modernization was performed to assess the effects of modernization, taking into account the reliability of geodetic works and the timeliness of the registry data. The present study involved updating the course of borders and areas of the plots used solely for agricultural purposes. The object of research represented the complex of 31 plots used for agricultural purposes, located far from the village buildings. The study area is located in Małopolskie voivodship, in the district of Myślenice. In order to verify the course of borders of plots the rapid satellite measurement using the method RTK / RTN with the receiver CHC X900+ was applied. The selected measurement technique is economic and accurate, therefore often used by surveyors for this type of field tasks. The study showed the need for re-modernization of land and buildings registry in the selected area.
Źródło:
Infrastruktura i Ekologia Terenów Wiejskich; 2017, II/2; 783-792
1732-5587
Pojawia się w:
Infrastruktura i Ekologia Terenów Wiejskich
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Entities in the domain name registration system in Poland in the light of the provision of the NIS-2 directive
Autorzy:
CHałubińska-Jentkiewicz, Katarzyna
Nowikowska, Monika
Powiązania:
https://bibliotekanauki.pl/articles/20311674.pdf
Data publikacji:
2023-10-31
Wydawca:
Akademia Sztuki Wojennej
Tematy:
domain
DNS
databases
registry
registrant
registrar
Opis:
The article aims to analyze the entities in the domain name registration system in Poland in the light of the provisions of the NIS-2 Directive. The European Union NIS-2 Directive replaces the original network and information systems (NIS Directive) from 2016, to account for the changing character of the digital society and the increased need for improved cybersecurity. Quoting the directive: „The NIS Directive is not sufciently clear when it comes to the scope for operators of essential services and its provisions do not provide sufcient clarity regarding national competence over digital service providers”. The legislation also imposes specific obligations on providers of DNS services in the EU, including registries and registrars, to maintain complete and accurate registration data and share this data in a timely manner to „legitimate access seekers”1. The article attempts to determine the entities involved in the domain name registration system and the mutual correlations.
Źródło:
Cybersecurity and Law; 2023, 10, 2; 7-18
2658-1493
Pojawia się w:
Cybersecurity and Law
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Aktualna sytuacja epidemiologiczna grypy w województwie śląskim
Current epidemiological situation of influenza in Silesian voivodeship
Autorzy:
Kowalska, Małgorzata
Powiązania:
https://bibliotekanauki.pl/articles/1426961.pdf
Data publikacji:
2021-05-05
Wydawca:
Śląski Uniwersytet Medyczny w Katowicach
Tematy:
grypa
epidemiologia
rejestr
influenza
epidemiology
registry
Opis:
Grypa jest chorobą zakaźną układu oddechowego podlegającą stałemu monitorowaniu w zakresie liczby nowych zachorowań oraz zgonów. W drugiej połowie marca 2020 r. zaobserwowano spadek liczby zachorowań na grypę w woj. śląskim i postanowiono sprawdzić, czy ma to związek z pojawieniem się nowego zagrożenia, jakim jest pandemia COVID. W modelu badania opisowego dokonano analizy trendu zachorowalności i hospitalizacji z powodu grypy, a jednocześnie przedstawiono dynamikę wzrostu nowych zakażeń wirusem SARS-CoV-2. Dokonano również chronologicznego usystematyzowania ważnych działań administracyjnych ograniczających rozwój epidemii. Nie można wykluczyć, że obserwowany spadek zachorowań i hospitalizacji z powodu grypy w woj. śląskim ma związek z restrykcyjnymi przepisami organizacji pracy i życia społecznego podjętymi dla ograniczenia epidemii COVID. Jednoznaczne wnioskowanie będzie wymagało wnikliwych badań i dłuższego okresu obserwacji.
Influenza is an infectious disease of the respiratory system subject to constant monitoring in terms of the number of new cases and deaths. It was observed that the number of new cases of influenza decreased in the Silesian voivodeship in the second half of March 2020, and it was decided to verify whether it is related to the emergence of a new threat, which is the COVID pandemic. In the descriptive model of the study, the trend of influenza morbidity and hospitalization was analyzed, and at the same time the dynamics of the increase in new SARS-CoV-2 infections was presented. Chronological systematization of important administrative activities limiting development of the epidemic was also carried out. It cannot be ruled out that the observed decrease in the incidence and hospitalization due to influenza in the province of Silesia is related to the restrictive regulations on the organization of work and social life taken to minimize the COVID epidemic. Unambiguous conclusions will require in-depth research and a longer observation period.
Źródło:
Annales Academiae Medicae Silesiensis; 2021, 75; 33-40
1734-025X
Pojawia się w:
Annales Academiae Medicae Silesiensis
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
System Informacji Przestrzennej w powiecie stalowowolskim w aspekcie możliwości jego wykorzystania przez administrację zespoloną
Autorzy:
Hejmanowska, B.
Winiarczyk, A.
Głowienka, E.
Powiązania:
https://bibliotekanauki.pl/articles/130640.pdf
Data publikacji:
2002
Wydawca:
Stowarzyszenie Geodetów Polskich
Tematy:
SIP
powiat
integracja danych
ewidencja gruntów
ewidencja budynków
LIS
county
data integration
land registry
registry buildings
Opis:
W referacie zaprezentowano wyniki prac na temat budowy i wdrażania Systemu Informacji Przestrzennej w Powiecie Stalowowolskim. Omówiono problemy związane z integracją danych graficznych i opisowych ewidencji gruntów i budynków. Przedstawiono wyniki prac nad udostępnianiem danych ewidencyjnych. Oprócz tego przedmiotem udostępnienia były dane z Wydziału Ochrony Środowiska. W ramach prowadzonych prac prowadzona jest aktualizacja części graficznej ewidencji gruntów w oparciu o wykonane w m aju 2002 zdjęcia lotnicze. Dostępność aktualnych zdjęć pozwoliła na analizę możliwości ich wykorzystania dla określania typu upraw. Prace, których wyniki są przedmiotem publikacji są w części finansow ane w ramach projektu badawczego: KBN 10TI2001200C/5075.
Źródło:
Archiwum Fotogrametrii, Kartografii i Teledetekcji; 2002, 12; 127-137
2083-2214
2391-9477
Pojawia się w:
Archiwum Fotogrametrii, Kartografii i Teledetekcji
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Prevalence of neoplasms in patients with acromegaly – the need for a national registry
Autorzy:
Matyjaszek-Matuszek, B.
Obel, E.
Lewicki, M.
Kowalczyk-Bołtuć, J.
Smoleń, A.
Powiązania:
https://bibliotekanauki.pl/articles/2081765.pdf
Data publikacji:
2018
Wydawca:
Instytut Medycyny Wsi
Tematy:
cancer
acromegaly
registry
IGF-1
GH
neoplasms
Opis:
Introduction. Acromegaly is an endocrine disorder caused predominantly by pituitary adenoma leading to autonomic oversecretion of growth hormone and secondary elevation of insulin-like growth factor 1 (IGF-1). Consequently, there are both theoretical and experimental grounds for establishing a correlation between this disorder and the higher incidence of neoplasms. Objective. The aim of the study is to evaluate the incidence and types of neoplasms among patients with acromegaly. Materials and method. The study included 67 patients with acromegaly, aged between 24 and 75±18.8 years, 46 women (68.7%) and 21 men (31.3%), BMI: 30.7±5.7 kg/m2, age at diagnosis 49.1±12.5 years, with the medians of GH and IGF-1 levels at diagnosis of 11.3 ng/ml and 663.8 ng/ml, respectively. A retrospective analysis of medical records with particular regard to physical examination, medical history, laboratory and imaging tests was performed. Results. Fifty-one patients (76.1%) suffered from at least one neoplasm, among whom 48 patients (71.6%) had benign proliferations, whereas malignant neoplasms (larynx, endometrial and colon cancers) were found in only three patients (4.5%). Conclusions. Benign neoplasms were found in majority of patients with acromegaly (71.6%) most notably: nodular goiter and colon polyps; malignant lesions were rare (4.5%). Only every fifth patient suffered from no neoplastic proliferations. No correlations between the studied parameters and the incidence of neoplasms were found, most likely due to the small number of patients. This is the reason for proposing the creating of the first national register of incidences of neoplasms among acromegalic patients.
Źródło:
Annals of Agricultural and Environmental Medicine; 2018, 25, 3; 559-561
1232-1966
Pojawia się w:
Annals of Agricultural and Environmental Medicine
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Nowotwory złośliwe w Polsce jako problem zdrowia publicznego
Cancer in Poland as a public health problem
Autorzy:
Wojciechowska, Urszula
Didkowska, Joanna
Koćmiel, Agnieszka
Powiązania:
https://bibliotekanauki.pl/articles/418245.pdf
Data publikacji:
2012
Wydawca:
Polska Akademia Nauk. Czytelnia Czasopism PAN
Tematy:
cancer
incidence
mortality
forecast
National Cancer Registry
Opis:
Malignant neoplasms are in Poland a major social problem not only in the older age groups, but they are the main cause of premature mortality (before age 65). This phenomenon is observed particularly in women - for several years cancer have been leading cause of death before age 65 (about 30% of deaths among young women and nearly 50% of deaths among middle-aged women). The projected increase in the number of cancer cases and deaths is attributable to demographic changes of the Polish population. Central Statistical Office in Poland estimates that the number of people over 65 years will increase by almost 75% by 2025. These changes translate into an increase in the number of new cases of the most common cancers in elderly (prostate, colon, lung among men and lung, breast, endometrial among women). The health phenomena taking place in the Polish population requires building a strong tool to monitor and analyze the processes involved. In case of cancer such tool is the cancer registry. In response to this need the National Cancer Registry launched a project aimed at creating a central database of cancers, establishing social baseline of conducting modern epidemiological research using information society technologies.
Źródło:
Studia Demograficzne; 2012, 161, 1; 153-166
0039-3134
Pojawia się w:
Studia Demograficzne
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Ochrona hipoteki
Mortgage protection
Autorzy:
Warciński, Michał
Powiązania:
https://bibliotekanauki.pl/articles/32304176.pdf
Data publikacji:
2023
Wydawca:
Kancelaria Sejmu. Biuro Ekspertyz i Oceny Skutków Regulacji
Tematy:
mortgage
land and mortgage registry
creditor
damage
Opis:
The subject of this paper is the analysis of the legal nature, construction, substance and conditions of application of three claims for protection of the mortgage regulated in Articles 91–93 of the Act on Land and Mortgage Register and Mortgage. Prevention claim under Article 91 of the above-mentioned Act is aimed at prevention of damage to mortgage creditor caused by reduction of value of the object of mortgage, infringing the security of this right. Claims under Articles 92 and 93 of the above-mentioned Act are relate to the compensation for damage already caused to the mortgage creditor due to the decrease of the value of the object of the mortgage and infringement of mortgage security.
Źródło:
Zeszyty Prawnicze BAS; 2023, 4(80); 42-62
1896-9852
2082-064X
Pojawia się w:
Zeszyty Prawnicze BAS
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
OBOWIĄZEK ZATRUDNIENIA KIEROWNIKA URZĘDU STANU CYWILNEGO I JEGO ZASTĘPCY W ŚWIETLE PRZEPISÓW NOWEJ USTAWY PRAWO O AKTACH STANU CYWILNEGO Z DNIA 28 LISTOPADA 2014 ROKU
The duty to employ the head and deputy head of Public Registry Office in light of the provisions of the new act of Public Registry Records Law of 28 November 2014
Autorzy:
Gurdek, Magdalena
Powiązania:
https://bibliotekanauki.pl/articles/444007.pdf
Data publikacji:
2019
Wydawca:
Wyższa Szkoła Humanitas
Tematy:
kierownik USC
zatrudnienie kierownika USC
zatrudnienie zastępcy kierownika USC
kompetencje wójta jako kierownika USC
head of Public Registry Office
employing the head of Public Registry Office
employing the deputy head of Public Registry Office
competences of a borough leader as the head of Public Registry Office
Opis:
W nowej ustawie Prawo o aktach stanu cywilnego z dnia 28 listopada 2014 roku ustawodawca pomimo wprowadzenia wielu zmian pozostał wierny zasadzie, zgodnie z którą kierownikiem USC jest wójt. Zachował również obowiązek zatrudnienia innej osoby na stanowisku kierownika USC w okręgach, w których zamieszkuje ponad 50 tys. osób. Zrezygnował natomiast z obligatoryjnego zatrudnienia w tych okręgach jego zastępcy. Ta zmiana, chociaż wydawać by się mogła drobna, powoduje, że tylko pogłębiają się istniejące od lat rozbieżności poglądów na temat tego, czy wójt zatrudniający inną osobę na stanowisku kierownika USC zachowuje uprawnienia w zakresie rejestracji stanu cywilnego, czy też nie. Dlatego też autorka poddaje dogłębnej analizie nowe rozwiązania, poszukując odpowiedzi na pytania: czym kierował się prawodawca, dokonując tych zmian oraz jakie mogą one wywołać wątpliwości i skutki prawne w praktyce? Ponieważ czynności z zakresu rejestracji stanu cywilnego mają bardzo doniosłe znaczenie prawne, autorka postuluje, żeby legislator w końcu tak uregulował te kwestie, by były one jednoznaczne. W związku z tym sama nie pozostaje bierną i proponuje de lege ferenda śmiałe rozwiązania prawne, które pozwoliłyby na ich eliminację.
In the new act of Public Registry Records Law of 28 November 2014, despite introducing a lot of changes, the legislator has maintained adherence to the principle according to which a borough leader is the head of Public Registry Office. What has also been kept is the duty to employ another person on the post of the head of Public Registry Office in the districts inhabited by more than 50 thousand people while the obligatory employment of the deputy head of Public Registry Office in those districts has been given up. However minor the change seems to be, it brings about the situation in which all the opinion discrepancies that has existed for many years concerning the question whether a borough leader employing another person on the post of the head of Public Registry Office maintains the rights in the scope of registering the marital status or not. This is why the author makes a thorough analysis of new solutions looking for answers to the following questions: what guided the legislator in making those changes, what doubts can they raise and what results can they have in practice? Since activities in the scope of registering marital status are of utmost legal importance, the author demands the legislator should finally regulate the issues so that they are explicit. Due to that fact she is not passive herself and suggests de lege ferenda bold legal solutions which would enable to eliminate them.
Źródło:
Roczniki Administracji i Prawa; 2019, 2, XIX; 133-149
1644-9126
Pojawia się w:
Roczniki Administracji i Prawa
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Małżeństwo świeckie i wyznaniowe w nauczaniu prawa polskiego w latach 1945–1993
The civil and religious marriage in the interpretation of Polish law in the years of 1945–1993
Autorzy:
Rakoczy, Tomasz
Powiązania:
https://bibliotekanauki.pl/articles/697163.pdf
Data publikacji:
2017
Wydawca:
Uniwersytet Opolski
Tematy:
civil marriage
religious form
family code
clergyman
registry office
Opis:
The institution of marriage is important for the both systems of law: state and church, as both of these two bodies must respect the truth about the institution of marriage. As the analysis of the problem shows, i.e. the possibility of contracting marriage in the religious form and in presence of other religious elements, the mentioned rule was not always respected by the Polish State. Religious elements were in fact significantly present in different jurisdictions of the partitioning states, which were in force on Poland’s territory under the rule of individual partitioning states. The possibility of the presence of religious elements in executing institution of marriage was taken into account in discussion that took place in Poland after the year 1918. All projects of acts of law were unfortunately rejected. The first act of law that was promulgated in 1945 presented a completely new, strange and even inimical to the Polish tradition, lay model of executing the institution of marriage. Its tightening followed rapidly after the promulgation of the next act of law, i.e. the Code of Family in the year of 1950. A change came about in the year 1998 through the Polish Concordat which came into force beginning with the year 1993. The possibility of contracting a civil marriage in the religious form was opened first for the Catholic Church. At the next stage, the same possibility was recognized in the case of ten other churches. As the analysis of the problem shows, contracting of a civil marriage in the religious form has always stayed under the control of the registry office. A clergyman is only an executor of the procedure.
Źródło:
Opolskie Studia Administracyjno-Prawne; 2017, 15, 2; 187-199
2658-1922
Pojawia się w:
Opolskie Studia Administracyjno-Prawne
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Problematyka prawna ewidencji gruntów i budynków w kontekście prawidłowej klasyfikacji gruntów rolnych
Legal issues of registry of land and buildings in the context of the correct classification of agricultural land
Autorzy:
Krzysztofik, Magdalena
Powiązania:
https://bibliotekanauki.pl/articles/953028.pdf
Data publikacji:
2016
Wydawca:
Uniwersytet w Białymstoku. Wydawnictwo Temida 2
Tematy:
registry of land and buildings
agricultural land
taxes
zoning
Opis:
Among the planners and representatives of the doctrine of agricultural law is still valid discussion about the proper zoning in rural areas. One of the legal instruments affecting the development of the space is to record land and buildings. Information from the register of land and buildings are used by the public authorities in all of these procedures, for which the legislator pointed to records as the basis for decisions. A special role of registry is in the context of local taxes and the tax on goods and services. Basis for assessment of local taxes are the data contained in the register of land and buildings. This means that the tax authorities are bound by the provisions of the records. If the allotment is classified in the records as arable land, then the authority shall issue a decision on the agricultural tax. It is important to relevance and accuracy of information placed in the records. This is particularly important for taxpayers who run a farm for which the legislator has provided for lower land tax and the exemption of farm buildings situaded on the property. Before 1 April 2013, if the land and buildings of a defined area was classified as agricultural land, in the case of delivery of this area (establishment of rights, sale, exchange) is not subject to tax on goods and services. However, in connection with the amendment of article 43 paragraph 1 item 9 Act on tax on goods and services registry ceased to be a priority for the benefit of the exemption from VAT. Introduced a new solution, according to which VAT exemption is subject to the supply of undeveloped land other than land for construction is not entirely accurate, so there are always new interpretation doubts. Undoubtedly Registry of land and buildings is not a source of domestic law or a source of universally binding law. It is the official registry confirms the established facts. So it performs the function of information and technical, reflecting the data that result from certain documents. Besides, the legislature and judiciary Administrative treat the information in the register of land and buildings as an undisputed source of law.
Źródło:
Studia Iuridica Agraria; 2016, 14; 175-189
1642-0438
Pojawia się w:
Studia Iuridica Agraria
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Review and characteristics of 585 salivary gland neoplasms from a tertiary hospital registered in the Polish National Major Salivary Gland Benign Tumors Registry over a period of 5 years: a prospective study
Autorzy:
Piwowarczyk, Krzysztof
Bartkowiak, Ewelina
Klimza, Hanna
Greczka, Grażyna
Wierzbicka, Małgorzata
Powiązania:
https://bibliotekanauki.pl/articles/1397308.pdf
Data publikacji:
2020
Wydawca:
Index Copernicus International
Tematy:
benign neoplasms
characteristics
pleomorphic adenoma
registry
salivary gland
surgery
Opis:
Introduction: A Polish National Major Salivary Gland Benign Tumors Registry (SGR) is a report of benign salivary gland neoplasms (SGNs) from 26 different centres in Poland, introduced in 2014. The aim of this study is to analyze demographic characteristics and clinico-pathological factors of benign SGNs treated in large tertiary institutions and to determine possible correlations between selected variables. Material and method: Analysis of 585 patients recorded in SGR and operated on for SGNs in the Department of Otolaryngology and Laryngological Surgery, University of Medical Sciences, Poznań, Poland, over a 5-year period. Patient age, sex, occupation, place of residence, tumor location, size, histology, recurrence, facial nerve function after surgery, wound healing, surgery procedure, availability of pre-operative imaging examinations, fine-needle aspiration cytology (FNAC) results were analyzed. Results: 338 females and 247 males with a mean age of 53 years were operated on. In total, 96.2% of tumors originated from the parotid and 3.8% from the submandibular gland. The most frequent primary tumor diameter was 2–4 cm (59.5%) followed by <2 cm (29.2%) and >4 cm (8.4%). Tumors of over 4 cm were frequently removed by partial superficial parotidectomy, while those under 2 cm – by extracapsullar dissection (ECD). Pleomorphic adenomas (PA) were predominant (58.8%), followed by Warthin’s tumor (WT) – 37.1%. Patients with WT were on average 13.3 years older than patients with PA. Discussion: This research can be helpful to better understand the clinico-pathological features of SGNs. Long-termin hospital-based analysis is important for subsequent metaanalyses and comparisons with other centers. The reasons why not all patients’ data are reported to the national SGR should be further precisely analyzed.
Źródło:
Polish Journal of Otolaryngology; 2020, 74, 5; 1-6
0030-6657
2300-8423
Pojawia się w:
Polish Journal of Otolaryngology
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Polski rejestr chorych na stwardnienie rozsiane – stan obecny, perspektywy i problemy
Polish registry of multiple sclerosis patients – current status, perspectives and problems
Autorzy:
Brola, Waldemar
Fudala, Małgorzata
Flaga, Stanisław
Ryglewicz, Danuta
Potemkowski, Andrzej
Powiązania:
https://bibliotekanauki.pl/articles/1030359.pdf
Data publikacji:
2015
Wydawca:
Medical Communications
Tematy:
epidemiologia
epidemiology
multiple sclerosis
patient registry
rejestr chorych
stwardnienie rozsiane
Opis:
Multiple sclerosis is a progressive, inflammatory demyelinating disease of the central nervous system, of an unknown aetiology. It predominantly affects younger people. Approximately, 40,000 people in Poland are estimated to suffer from multiple sclerosis, with about 2000 new patients diagnosed annually. Those rates are based solely on the statistics provided by the National Health Fund, and do not cover various essential information e.g. about the course and form of the disease, the degree of disability, the type of treatment, or the data on patients’ quality of life. In most European countries, this information is gathered by national registries of patients, which in many cases have operated for many years now. Up until recently, Poland stood as an embarrassing exception, being the biggest country with so many patients and no systematic registry. In 2013, the National Register of MS Patients was finally created following other countries’ example, in order to evaluate the basic epidemiological parameters collected from all centres specialising in the treatment of multiple sclerosis countrywide. The article presents the most important European databases, and explains the assumptions of the Polish Register of MS Patients that has been in existence since 2013. It also discusses the results from the Świętokrzyskie province, the national leader in multiple sclerosis data collection. As of December 31, 2013, the prevalence in this region of Poland was estimated at 109.1/100,000, and the incidence rate in 2011–2013 at 4.1/100,000 per year, with both rates higher than previously presented. A preliminary analysis of patients’ self-assessment of quality of life is also provided here, along with a discussion of the confinements, limitations and problems the further development of the registry is currently facing.
Stwardnienie rozsiane jest postępującą zapalno-demielinizacyjną chorobą ośrodkowego układu nerwowego o nieznanej etiologii, dotykającą przede wszystkim ludzi młodych i stanowiącą najczęstszą przyczynę niesprawności neurologicznej w tej grupie wiekowej. Szacuje się, że w Polsce na stwardnienie rozsiane choruje około 40 000 osób, a rocznie stwierdza się około 2000 nowych przypadków. Wskaźniki te oparte są jedynie na statystykach Narodowego Funduszu Zdrowia i nie zawierają wielu istotnych danych, m.in. na temat postaci i przebiegu choroby, stopnia niepełnosprawności, rodzaju leczenia czy jakości życia chorych. W większości krajów europejskich takie informacje są zbierane przez narodowe rejestry chorych, często funkcjonujące już od lat. Polska była pod tym względem białą plamą na mapie świata i największym państwem o tak dużej liczbie chorych, w którym nie wprowadzono żadnej bazy danych. Wzorem innych krajów w 2013 roku powołano ogólnopolski rejestr chorych na stwardnienie rozsiane, którego celem było opisanie podstawowych parametrów epidemiologicznych zebranych ze wszystkich ośrodków zajmujących się leczeniem stwardnienia rozsianego. W artykule przedstawiono założenia polskiego Rejestru Chorych ze Stwardnieniem Rozsianym (RejSM) i omówiono wyniki z regionu świętokrzyskiego, który jest najbardziej zaangażowany w zbieranie danych. Na dzień 31 grudnia 2013 roku chorobowość w tym rejonie Polski określono na 109,1/100 000, a zapadalność w latach 2011–2013 – na 4,1/100 000/rok. Wskaźniki te są wyższe od dotychczas publikowanych polskich danych. Przedstawiono również wstępną analizę samooceny jakości życia pacjentów oraz ograniczenia i problemy związane z dalszym rozwojem rejestru.
Źródło:
Aktualności Neurologiczne; 2015, 15, 2; 68-73
1641-9227
2451-0696
Pojawia się w:
Aktualności Neurologiczne
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Electoral Processes Digitalization : Trends and Prospects for Ukraine Based on the European Union Countries Experience
Autorzy:
Redchyts, Olena
Powiązania:
https://bibliotekanauki.pl/articles/2030683.pdf
Data publikacji:
2022-03-31
Wydawca:
Wydawnictwo Adam Marszałek
Tematy:
Election Processes
Standards
Voter Identification
Voter Registry
Voter Statistics
Cybersecurity
Opis:
The article purpose is to study digitalization of certain phases of Ukraine electoral processes, taking into account the European Union experience. The research design consists in a comparative analysis of electoral processes digitalization and its legislative provision. The article describes the legal field of EU electoral processes. The recommendations of the Council of Europe on e-voting standards are considered. The role of the administrator of the Ukraine State Voter Register is considered. The phases of electoral processes that require gradual digitalization are given. Scientific novelty of the study is to use a comparative approach in studying the electoral law of the EU and Ukraine. The research field is limited to the electoral law of the EU and Ukraine. The practical effects of the study make it possible to identify the advantages and disadvantages of digitalizing the phase of the electoral process. The scientific novelty of the study conducted in this article is to study the digital transformation restrictions at individual stages of electoral processes. The fundamental provisions in Ukrainian legislation on digitalization of electoral processes are determined. The article summarizes that the widespread means of electoral processes digitalization is the formation and updating of the voters registers and conducting their statistics. The author revealed that electoral processes digitalization has a fragmentary character in the EU countries, since the legal field in providing cyber security requires continuous improvement.
Źródło:
Reality of Politics; 2022, 19; 78-90
2082-3959
Pojawia się w:
Reality of Politics
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Rozwiązanie małżeństwa w drodze „umowy”? Uwagi na tle projektu zmian Kodeksu rodzinnego i opiekuńczego oraz ustawy – Prawo o aktach stanu cywilnego
Dissolution of marriage through a divorce agreement? Comments on the proposed amendments to the Family and Guardianship Code and to the Act – Law on Registry Office Records
Autorzy:
Haberko, Joanna
Powiązania:
https://bibliotekanauki.pl/articles/11854316.pdf
Data publikacji:
2013
Wydawca:
Kancelaria Sejmu. Biuro Analiz Sejmowych
Tematy:
Family and guardianship code
divorce
marriage
registry office records
Polska
Opis:
The author examines the draft law to amend the Family and Guardianship Code and the Law on Registry Office Records within the context of the proposed introduction of the possibility of dissolving a marriage through a divorce agreement. In her analysis, she concentrates on the constitutional principle of protection of the family and family life. She also deals with the question of whether a divorced could be granted without apportioning of blame. In the author’s view, the proposed draft law is not compatible with the principles of family law, violates the constitutional principle of protection of marriage and the family, and does not respect the principles of protection of civil status rights. It may also result in a weakening of the institution of marriage and its destruction by making it too much easy to dissolve a marriage without a judicial review.
Źródło:
Zeszyty Prawnicze BAS; 2013, 2(38); 11-24
1896-9852
2082-064X
Pojawia się w:
Zeszyty Prawnicze BAS
Dostawca treści:
Biblioteka Nauki
Artykuł
Tytuł:
Experimental evaluation of the accuracy parameters of former surveying networks
Autorzy:
Ślusarski, M.
Justyniak, N.
Powiązania:
https://bibliotekanauki.pl/articles/101101.pdf
Data publikacji:
2017
Wydawca:
Polska Akademia Nauk. Stowarzyszenie Infrastruktura i Ekologia Terenów Wiejskich PAN
Tematy:
modernization of land and building registry
cadastre
spatial data quality
Opis:
Surveying field measurements performed during the development and updating of land registry were based directly on measuring networks. Accuracy parameters of these networks are lower in comparison with modern measurement networks. The main reasons for the lower accuracy relate mainly to the lower precision of measurements, two orders of network and approximate techniques for determining the coordinates of the points of these networks. Currently, archival materials of the State Geodetic and Cartographic Resource are used during surveying of real estate (division, separation, modernization of land registry). The paper presents the results of experimental evaluation of the accuracy parameters of former networks. The purpose of the performed evaluation to was to analyze the possibilities of use archival materials of the State Geodetic and Cartographic Resource during surveying works related to real estate. The study was carried out on the basis of three test objects located in the Małopolskie voivodship. Points of the analyzed networks found on the ground were measured (approx. 34% of all points), and then their coordinates were determined. The representative research sample was constituted by sets of deviations Z - the length of the displacement vector of the point in the research sample in relation to its position considered as error free. The basic estimator of the accuracy of analyzed networks was the root mean square error RMSE. This estimator was determined on the basis of a vector Z* originating from the set, from which the outlying observations were removed. Values of calculated RMSE show, that for the analyz ed objects the required accuracy is met by no more than 16% of the points of the networks (RMSE ≤ 0.20 m). Therefore, it may be concluded, that for more than 80% of the border points the average position errors exceed the threshold size: 0.30 m relative to the 1st class geodetic network. Hence the conclusion that during surveying real estate, archival materials of the State Geodetic and Cartographic Resource should be used in a limited scope.
Źródło:
Infrastruktura i Ekologia Terenów Wiejskich; 2017, II/2; 825-835
1732-5587
Pojawia się w:
Infrastruktura i Ekologia Terenów Wiejskich
Dostawca treści:
Biblioteka Nauki
Artykuł
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