- Tytuł:
-
Od diagnozy do towarzyszenia w żałobie – wsparcie rodzin z dzieckiem z wadą letalną
From diagnosis to accompanying in mourning – support for families with a child with a lethal defect - Autorzy:
- Jarzębińska, Aneta
- Powiązania:
- https://bibliotekanauki.pl/articles/1372503.pdf
- Data publikacji:
- 2018-09-15
- Wydawca:
- Uniwersytet im. Adama Mickiewicza w Poznaniu
- Tematy:
-
child with a lethal defect
prenatal pedagogy
social support - Opis:
- This article characterizes the interactions and institutions in which parents can receive support after their child has been diagnosed with a lethal defect. First and foremost parents need information and emotional support when making decision regarding their child. The primary source of the aforementioned elements is the hospital personnel and the perinatal hospice- that is if parents decide to contact it. If the child is born alive and discharged from the hospital then the parents require support during its treatment (which more often than not is identical with palliativecare) and rehabilitation, even social rehabilitation. Children’s hospices can offer many services in this particular matter. On each stage of the child’s disease the contact with other parents of children with lethal defect is crucial. They can negate the feeling of isolation, give practical advice regarding the situation and most of all give hope that even though the prognosis is fatal some of the children lived.
- Źródło:
-
Interdyscyplinarne Konteksty Pedagogiki Specjalnej; 2018, 22; 375-391
2300-391X - Pojawia się w:
- Interdyscyplinarne Konteksty Pedagogiki Specjalnej
- Dostawca treści:
- Biblioteka Nauki
Artykuł