Temat: genetic data - Katalog OPAC zbiorów

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Tytuł:: Biobanki w dobie Big Data z perspektywy prawa konstytucyjnego
Autorzy:: Katarzyna, Łakomiec,
Powiązania:: https://bibliotekanauki.pl/articles/902949.pdf
Data publikacji:: 2018-06-22
Wydawca:: Uniwersytet Warszawski. Wydawnictwa Uniwersytetu Warszawskiego
Tematy:: biobanks
right to privacy
informational autonomy
genetic data
constitutional law
biobanki
prawo do prywatności
autonomia informacyjna
dane genetyczne
prawo konstytucyjne
Opis:: Biobanks for research purposes legal regulation is currently under debate. An important issue discussed is protection of the personal data collected in the biobank, including genetic data and other health data. This subject is extremely important given the current development of information technologies that allow for mass aggregation and analysis of personal information. This article describes the constitutional requirements for the discussed regulation, in particular regarding the privacy and informational autonomy of the individuals. The author refers in particular to the application of the proportionality principle.
Źródło:: Studia Iuridica; 2018, 73; 105-118
0137-4346
Pojawia się w:: Studia Iuridica
Dostawca treści:: Biblioteka Nauki

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Tytuł:: Ochrona danych genetycznych jako danych osobowych
Autorzy:: Arwid, Mednis,
Powiązania:: https://bibliotekanauki.pl/articles/902483.pdf
Data publikacji:: 2018-06-22
Wydawca:: Uniwersytet Warszawski. Wydawnictwa Uniwersytetu Warszawskiego
Tematy:: genetic information
genetic code
data protecion act
GDPR
informacja genetyczna
kod genetyczny
ustawa o ochronie danych osobowych
RODO
Opis:: Any information relating to an identified or identifiable natural person is considered personal data, and as such, is protected by data protection laws. There are, however, a few specific categories of personal data related to the intimate sphere of life, the processing of which is, in principle, prohibited, unless one of several exceptions occurs. Although, early data protection regulations distinguished the state of health as specific category of data, genetic data were not treated as such. Therefore, in the light of Convention 108 (adopted in 1981) and Directive 1995/46, genetic data were treated as “ordinary” personal data. The Polish Data Protection Act from 1997 went further than the Directive 95/46 and listed “genetic code” among specific categories of data. However, the term “genetic code” was not defined in the Act and in practice caused a lot interpretation problems. The General Data Protection Regulation, adopted in 2016 and replacing national laws, including Polish data Protection Act, enumerates genetic data among specific categories of data. In the light of the GDPR “genetic data” means personal data relating to the inherited or acquired genetic characteristics of a natural person which give unique information about the physiology or the health of that natural person and which result, in particular, from an analysis of a biological sample from the natural person in question.
Źródło:: Studia Iuridica; 2018, 73; 85-103
0137-4346
Pojawia się w:: Studia Iuridica
Dostawca treści:: Biblioteka Nauki

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